Newbie!

Hi ๐Ÿ˜Not quite sure I am doing this right but here it goes! I was diagnosed in January after 3 months of being off work and in pain, and I have just give back to work these past couple of weeks! I am on light duties atm, but working 11:30 until 8:30 in retail is killing me! I'm 24 and really want to continue working, and make a career for myself but finding it so disheartening every time I have to crawl upstairs when I get in from work and be helped by my fiance! Also I hadn't noticed the fibrofog much until I went back and it's kinda scary! I was just wondering what tips everyone has for working and coping? And what do others find works best for them!

Thank you, and I hope you are all having a good day!

๐Ÿ˜บ๐Ÿ˜ฝ

10 Replies

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  • Hi CatrinaEira,

    Firstly I am sorry you have been diagnosed with Fibro and secondly welcome to the forum. One of the administrators will be along shortly I would think with all the relevant info for you :) This is the best forum for a chat, some fun and serious information. The people are friendly, just jump in when you are ready :)

    There is usually a chat room in the mornings and goodness knows where that will take you , but it is usually fun :)

    Work can be difficult, the only advice I can give you would be to rest when you can, when you are working if you can grab a break, take it. When you get home try to relax and rest. Take care :)

  • Thank you ๐Ÿ˜บI try to rest as much as possible but not always an option! Will have to give things a lot of thought I think! Thank you for your welcome and support ๐Ÿ˜ธ

  • Hi, welcome you have found a good place for help and support, the only advice I would offer is be kind to your self with what you expect :-)

  • Thank you ๐Ÿ˜บWill definitely have too ๐Ÿ˜บ

  • Hi CatrinEira,

    Can I join in welcoming to our lovely friendly and supportive forum ๐Ÿ˜€๐Ÿ˜€๐Ÿ˜€

    Firstly I think you may find a lot of very useful information if you visit our mother site fibroaction.org so much useful info into all sort of issues ๐Ÿ˜Š

    I understand completely what you say about working and wanting to build a career for yourself, but those sorts of hours are a big ask, and no wonder you are in agony and not fit for much else afterwards. Is there any way you could have a word with your HU department and see if you can cut them back now for a while and gradually increase them as and when you get your pain under control.

    I'm wondering if your GP has referred you to a pain management team, if not it might be a good way to go and then you can also get occupational therapists involved to also help with regards to your working. Also do you have a good relationship with an understanding GP who knows and understands Fibro, that is one of the most important things in my books, otherwise you can feel like you're banging your head against a brick wall.

    I eventually had to give up work 10 years ago, but I'm more than double your age and I'd actually had mine since 17 but not properly diagnosed until much later, so I do understand the conundrum you must feel.

    I'm sending you lots and lots of positive healing vibes, and very much look forward to seeing you around the forum and getting to know you better ๐Ÿ˜€๐Ÿ˜€

    Foggy x

  • Thank you so much for your welcome, support and advice!

    Cutting my hours isn't really an option at the moment, as it would be 4:30pm until 8:30pm, and I am a lot worse at night! Currently trying to get an early shift as morning is when I am at my best (after I stretch out the stifness a little)

    I have been referred but not received at an appointment!

    GP I struggle with a little, trying to get an appointment. can be hard enough.

    Thank you for all the help! It's nice to know there are others around who understand and know what it's like ๐Ÿ˜บ

    Look forward to taking more ๐Ÿ˜ฝ

  • Hi Catrin :)

    Welcome to our friendly fibro forum and I hope that you will find the friendly advice and support that you need :)

    Congratulations on getting back to work it must have been quite difficult to do. I remember feeling like that after work and then sleeping through my days off :o

    I know there are many members who will be able to give you some appropriate advice and they will pop along to help I'm sure. It's been that long ago since I worked that I don't think I could really help you.

    I can however give you the link to our Mothersite fibroaction.org where there is a wealth of information regarding Fibromyalgia including a range of printable and downloadable Fact Sheets. One of which discusses Lifestyle Adaptations and I wondered if it would be of use to you so have pasted the link below :)

    About Fibro Fact Sheets - Information on Fibromyalgia Syndrome Fact Sheet 6: How Is Fibro Treated?

    Lifestyle Adaptations.

    fibroaction-public.sharepoi...

    I hope this is helpful and wish you wellness :)

    Fluffie hugs and smiles :)

    xxx sian :)

  • Thank you so much! Will give this a good look over.

    Thanks for the advice and support ๐Ÿ˜ฝ๐Ÿ˜บ

  • Hi CatrinEira

    Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find the forum useful, informative and loads of fun.

    I genuinely look froward to seeing you around the site.

    Ken

  • Hi catrinEira

    it will be hard at first but you just have to listen to your body. There is no good in running yourself into the ground it will only make you worse. I have ME which causes to feel exhausted most of the time. I have had to go from working a 35 hour week to 24 hours. Most of the time I manage but occassionally I have to take time off to re-charge my batteries. I have just taken a few days off. (going back today). I know you don't want to let anyone down! I have just been told I have messed up my chance of being assistant manager where I work because I am not reliable enough but seeing that working myself into the ground caused the ME in the first place I am putting myself first.

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