small fibre neuropathy: A study that... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,419 members66,472 posts

small fibre neuropathy

Ian123 profile image
25 Replies

A study that raises some questions about Fibromyalgia cortjohnson.org/blog/2014/1...

Written by
Ian123 profile image
Ian123
To view profiles and participate in discussions please or .
25 Replies

interesting, but i will have to read it several more times before i can make full sense out of it.

Ian123 profile image
Ian123 in reply to

Skimmed it a couple of times for the main points :-) gone rooting around in the detail of the papers mentioned what a cure for boredom befuddle it :D

in reply to Ian123

If bored grab a ball of wool and learn to crochet. that is what i intend to do soon, while i watch last weeks Dr Who. :P :P

lou60 profile image
lou60 in reply to

That's a brilliant idea.xx

in reply to lou60

What is:? The crochet or Dr Who. :O

Ian123 profile image
Ian123 in reply to

Just settle for brilliant mayrose54 :D

in reply to Ian123

:P

lou60 profile image
lou60 in reply to

Both. x

in reply to lou60

2 African flower patterns crocheted and Dr who watched.

Wot`do i do now?

lou60 profile image
lou60 in reply to

I've just learned how to crochet properly, managing to keep the blanket I've been working on in the square shape it should be not the frilly circle I used to end up with. x

in reply to lou60

I have just crocheted a new outfit for my precious doll. She now has a new pink dress edged with glittery white a bolero in g, white, matching knickers, shoes and headband with a white flower edged in pink.

I have taken a photo but computer isnt recognising the card reader.

Son has had a busy week so i have been waiting before asking for help.

sue xx

in reply to

There are some really good pinterest sites for beginers. Just type in Pinterest begining crochet

lou60 profile image
lou60

Interesting, I have permanent nerve damage through lack of Vitamin D over a long period of time.

Ian123 profile image
Ian123 in reply to lou60

Isolating the damage has to be an improvement for treatment when something specifically blocks pain where it is needed rather than the general area as you become comfortably numb.

lou60 profile image
lou60 in reply to Ian123

The problem with me is I can't always feel my feet on the ground so I'm constantly off balance and often appear under the influence, if only, alcohol doesn't agree with me anymore. Lou xx

Ian123 profile image
Ian123 in reply to lou60

Often have something similar when solid floors feel as though they are made of rubber which is stretching as I stand on it achieved stone cold sober as alcohol does not agree with me or the medication :D

goodatheart profile image
goodatheart in reply to lou60

I also cant feel my feet to. And I have be asked if I was drunk as I was trying to walk with out my crutches. I just said I wish I was and lol off. I feel for you Lou xx

Fibrofoggiest profile image
Fibrofoggiest

Very interesting reading thanks Ian, I get a lot of neuropathy which manifests itself in various ways, not all of which make sense to me, let alone anyone else.

The bulk of the text was rather befuddling, but the bits I managed to grasp did make sense, and like sue I will probably have to read it several more times before I get the full picture, if that's possible from any medical papers :o :-)

Foggy x

Ian123 profile image
Ian123 in reply to Fibrofoggiest

Sure it will remain befuddling for some time yet as even the experts are unsure of the meaning of results found so far, made sense as someone living with it how it would make you feel or not at times

goodatheart profile image
goodatheart

I really can't make sense of it my head space is not good at min . but I do suffer with neuropathy in my feet dew to a long stay in intensive care. Of five months in a coma. I woken up with no feeling in my feet. Sigh then it took two years before they dinosed me with fibro/chronic fatigue. Xxx

Ian123 profile image
Ian123 in reply to goodatheart

Basics as I understand it is taking skin biopsy looking for nerve damage, should there be any nerve damage - find what is causing it along with an appropriate treatment for the damaged nerves.

goodatheart profile image
goodatheart

I really can't make sense of it my head space is not good at min . but I do suffer with neuropathy in my feet dew to a long stay in intensive care. Of five months in a coma. I woken up with no feeling in my feet. Sigh then it took two years before they dinosed me with fibro/chronic fatigue. Xxx

TheAuthor profile image
TheAuthor

Thank you Ian123, that was really interesting.

All my hopes and dreams for you

Ken

Ian123 profile image
Ian123 in reply to TheAuthor

Your welcome I hope that knowing research is giving the medical community a greater insight into Fibromyalgia takes us all towards a better future :-)

Very interesting read squiggle :)

thanks for sharing :)

xxx sian :)

You may also like...

Small fibre neuropathy

nerve conduction test has shown that I have small fibre neuropathy. I think I read somewhere that...

Living with neuropathy

with sciatic nerve problems... I have multi-able neuropathy....  Anyway if anyone know of a tool I...

What is the difference between fibro and peripheral neuropathy.

Hi I have been reading about the two and they seem to share some similarities. Could anyone explain...

Fibromyalgia & Emotional Impact Study

answering some questions about how their fibromyalgia affects their life, what they think about...

THE PHOSPHATE RETENTION THEORY RE: SMALL, HARD LUMPS

this site by an Israeli doctor. What he is saying about these lumps makes so much sense to me. In...