Fibromyalgia Action UK
40,303 members52,405 posts

Doctors appointment

Hi all I am new to this site but am glad I've found you. 2 years ago my doctor decided that I had polymyalgia rheumatica I was immediately put on steroids felt slightly better but then other problems started weight gain etc so 1 month ago after tapering I have come off steroids. Dr referred me to a rheumatologist, 6 months ago still waiting so I decided to look into my symptoms and found out about fibromyalgia (had mentioned this pre pmr diagnosis) anyway I realised that I have roughly 85% of the symptoms, so with symptoms printed out and highlighting the ones that effect me I talked to my doctor only to be told they only diagnose fibromyalgia when all other reasons are counted out. Is this right? She did however give me a prescription for amitriptyline. Sorry this is long post but would be grateful for your thoughts. Thanks Sue

6 Replies

Hello Susie, in answer to your question it is true that a diagnosis of Fibromyalgia is usually made after other illnesses are ruled out, Fibromyalgia shares many of its symptoms with other illnesses so this process of elimination can take some time, I do hope this helps a little. Lou x


Hi susie901

I sincerely hope that you are feeling well today? Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun!

As lou60 says, it does tend to be this way. I was personally diagnosed after extensive testing for other illnesses. I genuinely hope that you can find the answers that you so desperately desire and deserve.

All my hopes and dreams for you

Ken x


Hello Susie901,

Welcome to the community !

I do hope you find it beneficial as others seem to, as many members report it to be supportive & informative.

You mention Fibro & it's diagnosis, please can I provide you with a link to our FAQ section which answers the following question using many relevant links from our mother site , 'I have symptoms of Fibro, how is it diagnosed?'

FibroAction is a UK charity who are raising awareness making up-to-date, reputable and evidence-based information about Fibro more readily accessible & this is at the heart of what it we do. FibroAction is one of a number of organisations that have the Information Standard Certificate to ensure that the information we produce is clear, accurate, balanced, evidence-based and up-to-date.

Amitriptyline is used in the treatment of Fibro, please see Tricyclic antidepressants (TCAs) in the following link;


Hope this helps

Best Wishes

Emma :)

FibroAction Administrator


hi susie,isaw a very good rheumatologist after examination diagnosed me with fibromyalgia,hypermobility,chronic pain syndrome & cervical spondylosis at that one wishes lilian


Thanks for all your comments I just wonder how they can rule out everything else when I'm not being tested for anything else unless it's all down to the rheumatologist. Thanks again Sue


Hello Susie,

My Fibro was diagnosed on a second opinion by a Rheumatologist after a series of tests, scans & MRI's including a Nuclear Medicine Bone Scan. I expect your Rheumatologist once you are referred will explain the plan of action and the links I have given you should provide further information.

All the best

Emma ;)

FibroAction Administrator


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