The TPI that have been reducing my pain to manageable levels have been stopped, I can no longer have them. I am terrified that I will be reduced to what I was before I started having them. I was in such pain that even the slightest movement could set off agonising cramps. The pain was at 8 on a scale of ten almost all the time - the rest of the time it was at 8 or 9. I couldn't sleep more than four hours at a time, I never dreamt, I could not concentrate to read a book. I shuffled like an old lady, was bent over like one too. On top of that I would sometimes wake up with my muscles paralyzed with pain, one awful morning it took me an hour and forty-five minutes just to reach the light switch 18" from my head. Unless I can get them done somewhere else, that will be my life.
Instead of adequate pain relief, they have offered me CBT. Which quite frankly I think is an insult and a sick joke.
In addition to all this, I have an ATOS appointment coming up.
Written by
MorganScorpion
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Oh I am so sorry to hear what you are going through I can understand that you must be very worried that lack of the injections with put you back in a very bad place. Have they given any explanation why they are being stopped, is it a funding issue? I know I was getting electronic acupuncture every 3 months and then a couple of years back the NHS reduced it to every 4. It might not seem a big reduction but it means that any help with the pain doesn;t last from one session to the next so I can understand where you are coming from. They seem to think CBT is the answer to everything, it might help some people cope with the pain but I ahve never known anyone find that their pain disolves away after using the techniques. Is your ATOS appt for ESA or PIP? Have you had one before? Big hugsx
Apparently it's because "most people" don't benefit from it. Clearly those of us who do, don't count.
ATOS have just told me not to show up to the appointment, as they've received "new information", but I have to ring up the JobCentre on Monday to find out what they have decided to do. I am trying to transfer from Incapacity Benefit to ESA. No idea what the new information is either.
I am so sorry to read of the uncertainty and anxiety that they have left you with, and I genuinely hope that you can find some resolution and relief to this issue. I was wondering what the chances were that you could be referred back to a pain management clinic for assessment and hopefully a different medication?
I want to wish you all the best of luck with this, and I hope that your ATOS news is good news!
Hi I don't take medication, all I can hope for is either that another clinic will do the trigger-point injections; or that the acupuncture my ex-boyfriend is trying to get for me will work.
On Monday got the news that I was entitled to ESA, just don't know whether it's the Support Group or WRAG. So whilst I can't quite relax yet, I won't be left without income. Which is nice.
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Trigger point injections and loss of mobility 
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