living hell is only way to describe it

I had an episode 20 years ago that lasted about a year trooping around a@ e departments trying to get an answer muscle twitching .muscle spasms, crawling sensations sensitive scalp tingling sensations all over eventually subsided odd sensations continued over years but bearable then 9 years ago back with a vengeance horrendous for about 3 years then got manageable ,Last week back with a bang although I have been getting exaburated symptoms for about 6 months this time starting off with relentless shaking so bad off to accident and emergency as I think I am having a fit has anyone else suffered these symptoms? doc has given me propranolol to try today

2 Replies

  • Hi babyinny

    I am so sorry to read that you have suffered so much with all of this over the years, and I genuinely hope that you can find some resolution and relief to these problems. I must admit that I have on occasion felt what I would describe as a 'Crawling Sensation' inside my head, and it really is horrendous.

    I remember there was a post similar to yours quite a few months ago and many of the members described the same sensation, so you are not alone with this.

    I really want to wish you all the best, and urge you to keep a diary of what sensations you are feeling to present to your doctor when you see them.

    All my hopes and dreams for you


  • Thank you so much Author for your response it does help when you know you are not alone but on the other hand you feel so sorry for all the sufferers

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