Hi I haven't got FB, but my partner has & I've only just grasped the severity. My ignorance is inexcusable, but can non-sufferers join you?

[Joncrocker]

[Hidden]

Hello joncrock. How wondefull of you to want to find out about fibro and to want to join the site. I thinks it`s ok but not sure somebody will soon be on that will know sue

[Lesley-chard]

Hi. I personally feel that it's great that you wanted to join us. What you learn from us can only help you to support your partner. Everyone is ignorant until they are faced with it so don't be harsh on yourself your wanting to do something now that's what's important.

Wishing you both the best of luck

Lesley x

[sophie22]

Hi its a great help to suffers and their partner are clued up, one of my daughters got herself well informed and it is great that I can talk to her, I think she is more relaxed about things as well because she has some understanding of what her mum is experiencing. Welcome to the site I hope it helps both you and your partner to have somewhere to turn to for help and a laugh.

[Royalspec01]

NP Here sounds grand but don't forget although we are the same we all flare individually so fibro management can help there you doc should be able to either refer or show you where to apply welcome:)) xx

[Hidden]

I think it's wonderful that you want to join the site, and I hope someone confirms that it is ok (I'm sure it will be?). I've begged my family to do some reading on the condition because they don't understand and constantly criticize me, but they aren't willing to. Half the battle with Fibro is gaining understanding and support from those around you, so by taking an interest in finding out more about the condition, you're taking great steps towards helping your partner manage her condition. I take my hat off to you x

[Sniffer8]

Hey there, don't be so hard on yourself. It's not an easy thing to get your head around. For the life of me I can't adequately express my tiredness and lack of energy to my family. Just great that you want to try.

[Mdaisy]

Hello Jonrocker,

FibroAction hopes the information helps to educate people about Fibromyalgia Syndrome (Fibro), including people with Fibro, their family, friends and carers, healthcare professionals and the public at large, as well as providing support to patients.

I think it is great that you have taken this step to try to develop more understanding and your point of view from how the Fibro affects you might be a insight. As some not all, may be so overwhelmed with their pain at times that partners feelings can be forgotten, as often you are suffering emotionally too. It must be so hard seeing your loved one in pain and feel like you cannot help sometimes.

The only reservation I would have and I will just check will my seniors is if your partner is a member or would like to join in the future, they may not benefit from the support as they may feel like they cannot be completely honest maybe. Even though this may help as talking honestly about your feelings may help you to work towards understanding of the effects on you both.

To be honest it's a new situation to the forum and it is hard to know what to say for the best. If I may, I'll email the seniors and get back to you if thats OK?

Best Wishes

Emma

FibroAction Administrator

P.S you may find this post helpful

healthunlocked.com/fibroact...

[TheAuthor]

Hi joncrocker

Firstly, I would sincerely like to welcome you to the forum and I sincerely hope that you find it as useful as I do.

It is a wonderful thing that you are endeavouring to discover all the information that you can relating to this horrid illness. I sincerely hope that your partner is feeling as well as she possibly can be today?

It would appear from your reaction that you already have grasped the scope of the nature of Fibro? And are beginning to understand just how terrible it can be? However, we are all unique individuals, and we all react differently to both the illness and our medications.

I want to wish you all the best of luck in your search for answers.

Ken

[Sarah-Jane]

Hi and welcome! If only there were more like you who accepts they don't know everything but actually does something about it. May I suggest you get a copy of Fibromyalgia for Dummies? I have found it to be very helpful, although I'm in the UK not USA, and so has my husband.

Why don't you both come on here? It may help you both then. If you are worried that your questions will then be seen by her you could come on here anonymously?

[Hidden]

I can't see it would be a problem when there are others that come here to ind out how to support their children or other loved ones. The more people that are aware of the issues fibro sufferers face the better, in my humble opinion, especially if you wish to educate yourself to help you to love and care for your partner. Welcome!

[wildwoman]

Hi, welcome, I hope you stay with us. Best wishes

[reflective-peace]

Hi, I just wanted to add my encouragement, I was welcomed as a new member recently even though I am not a sufferer myself. My daughter has been unwell for about 10 years and her diagnosis has recently been changed to one of Fibromyalgia, complicated by Hyper-mobility. You will find this a very helpful, friendly and informative place to be

[Shazzzy]

I think its a great idea and hope its helpful to you and your partner.

[fibro]

Hi glad to hear you'd like to join us, thats the best way to be supportive to your partner.

This is a really friendly helpful site, i hope you both gain some benefit xx

[Mdaisy]

Hello again Joncrocker,

As I thought there is no problems as FibroAction would like to support all members of the family and the person living with Fibro. I hope the site is helpful not only for understanding and support.

If your partner did want to join as suggested by Sarah-Jane it can all be done anonymously if that is required.

See you around

Emma

FibroAction Administrator

[Fibrofoggiest]

Hi there can I add my welcome to you and I think it is a wonderful thing you want to do to support and learn about this complex problem that your wife is suffering. I would join both Emma and Sarah-Jane in suggesting that also encourage your wife to join us here too We are a very friendly bunch and there is a lot of knowledge and experience to tap into, together plenty of support and encouragement.

Sending positive healing vibes to your wife and strengthening ones for you

Foggy x

[Jackieblu]

Hi JonCrocker I just wanted to say how good it felt to see your post,I felt very encouraged to see that husbands,wives,partners,family etc can join up and learn more about the horrible,complicated illness that is Fibro. I've said before on here, this site has been has a life saver for me,I didn't realise that all these symptoms I had were down to Fibro. After joining It felt like a jigsaw all fitting together and I realised very quickly there are people out there suffering the same symptoms as myself and I wasn't alone! It's all under the one roof so to speak,no trawling through books,internet and wherever else,it's all here! So good on you for taking this step and joining FibroAction! Best Wishes Jackiex

[fenbadger]

Hi JonCrocker

I was just going to message Emma with "don't see why not" when I saw her second message, so welcome indeed.

I can add nothing useful to what's gone before. Don't push your OH to join, that would possibly make them unnecessarily uncomfortable. But the welcome would be as warm

As you get into the site you will see your ignorance is very excusable. I won't elaborate on that or Foggy or Zeb or gins or Mayrose or lipbamlmaddict or wildwoman or someone will slap me. Or even worse, Ken will lock away the cake .

I tend to go on. Stop me if I'm boring you.

Gentle hugs for both.

Hey. Foggy and gins pass my spellchecker, but the others don't. Harry Potter where are you?

[fenbadger]

Ps do you have dogs or evil cats?

[lilian68]

hi joncrocker

my husband didn't understand how bad things were for me at first despite being a great hubby,you see you can't swap places for a day as you would sharp want to swap back.