I've been part of a little pilot scheme for my local NHS TalkTogether team. I was prescribed CBT and the NHS Fisher Price Guide to mental health that they sent me was getting me nowhere. I needed help with pain management and fatigue, not advice like "wash your hair more often" (that's genuine advice from them by the way). But my telephone councellor just happened to be a chap who used to teach courses in coping with Fibromyagia. So instead of the Fisher Price Guide he switched me to the worksheets from his old job. It's really helped me. They are now rolling this out across their team and he's asked if I will come and talk to the staff about living with Fibromyagia and what they, as phone councellors can do to make the process easier, friendlier and on the right level.
I was wondering if anyone had anything they would like to tell them. What would you, as a Fibro suffer receiving support over the telephone, like from them?