struggling with the pain

[lifeless]

pain getting worse than ever im really uupset as my daughters noticing my mood changing id this normal as really upsetting me as my 2 girls are my world been really down and no energy but snapping and modd changing alot didnt notice till my eldest toldme feel so bad and worthless

[Hidden]

Hi there

I'm sorry for your situation you must be feeling quite sad and not knowing what to do now. It always hurts when someone, even family, criticises us and then through worry our health becomes worse.

How would we ever know that we were being like that if no-one points it out?

Now is a good time to talk to the family about why you are like that and you have no idea how to manage it yet but are working on it. They could help you in many ways if they knew where you'd like to be helped.

Relaxation time set into you daily routine may be good for you. I'm a strong advocate of relaxation for many reasons, firstly because my/your body mimics sleep so has the chance to heal a little, secondly it re-charges my/your battery giving me a little more 'oomph' for the next part of the day and thirdly to reduce my/your stress and anxiety as it has nasty affects on our health.

All of the above affects our mood.

Remember that I say this as from my own experiences I'm not a doctor.

Wishing you well and hope relaxation works for you if you give it a go

xxxsianxxx

[lifeless in reply to Hidden]

Hi thanks for your msg it helped me i have spoken my daughters who im a single parent 2 and i told them to tell ne when ever i feel or seem diffrent as they are my world and i apolgised as m mood swings have upset them as not much energy at all i sleep alot in day but not much at night due the pain

im looking for some relaxation tips and found a few i will try but due for my gp to up my pain medicationas not helped for the 3 months ive had them....

thanks sian for your advice its greatly appriciated .. Luke x

[Hidden in reply to lifeless]

I am pleased you spoke to your daughters Luke and found my advice helpful. I have posted a few relaxation posts in the past mainly guided imagery if you go to symptoms / treatment a few are in there

I think it may be time now the festivities are over to put up a new relaxation post so thanks for giving me the oomph to do it.

It'll be tomorrow though if you keep an eye out

xxxsianxxx

[lifeless in reply to Hidden]

thanks sian again it did help alot and i will have alook around for the relaxation tchniques thanks again sian x luke

[Mdaisy]

Hello Lifeless,

So sorry to hear you are struggling with increased pain experience and naturally this must be affecting your mood. I would consider visiting your GP to discuss you medications to see if there is anything that can be added or anything that can be increase. Here is a link to our website about treatments for Fibro & Complementary Therapies that may help also;

fibroaction.org/Pages/How-I...

fibroaction.org/News/New-Co...

It is hard within families as when people are in a heated discussion things can be said that maybe people then regret. I hope your eldest comes to speak to you later to clear the air and I do hope the stress hasn't made you feel worse.

Maybe try a warm bath with or without Epsom salts if you manage it or a hot water bottle for the painful areas. Do consider making an appointment with your GP tomorrow

Best Wishes

Emma

FibroAction Administrator

[lifeless in reply to Mdaisy]

Hi emma i rang gp today and hes coming out to me to up m meds hopefully asnot helped since ive had them andi said sorry toboth my girls as ima single parent to them and they are my world i have told them to tell me any time i upset them due to my moods and they promised we had a big cuddle which hurt alot but was worth it tosee them smile at me .

i have looked at the links you have sent me thank you i have kept themin favorites to look at in deatial when im not asleep thanks emma im about to have dinner which eldest has cooked just not have much taste in my mouth lately which been little worried about but might be due to my cold not sure

thanks again emma x luke

[diane63]

It is hard, but,,, I have learned over the years with my kids,,, they have to learn that not all people are fully fit and healthy.. I tried many times to pretend I was ok.. Put the false smile on, but that stressed me out more, so I used to say, I am ok, just my illness makes me poorly sometimes, so just now I am finding it hard xx hope this helps x

[lifeless in reply to diane63]

hi diane it has helped as i did that for so long until i coudnt cope due to all myy health issues and finally got the help i need but when i finally got help i felt weak as a man as my 2 girls then try grow up to help me alot and with sleeping alot i miss them smiling and fooling around like kids do they know myy vody in pain my eldest understands my youngest i tried explain it just like a permanent painful back but all over body and she said dont worry she masage my backmade me smile .. thanks diane x luke