Just been diagnosed

[RachaelLouisewithFibro]

I have got,amongst a raft of things, Ehlers Danlos syndrome, anyone else have it?

[Cookie72]

Hi Rachel, in my day, if I'm correct, it was known as double jointed, am I right, is it painful and does it become problem ???? Gentle hugs ...Dee x

[Fibrofoggiest]

Hi there Rachael. I'm sorry, but I haven't come across your syndrome, having looked it up though, it mustn't be very nice for you at all, with so many things contributing to it.

We welcome everyone here and if you could elaborate on what other things are wrong with you, we can perhaps help you some more. I really look forward to hearing from you again, and you take great care of yourself

Foggy x

[jillylin]

Hi,

I believe it's one of the Hypermobile syndrome aspects. I have HMS.

Looking forward to getting to know you.

Hugs

Jillyxx

[haribo36]

Good morning Rachel,welcome to this lovely site full of caring,compassionate and understanding people.How does the fibro affect you? We try to support each other and have a laugh along the way as well.Please feel free to ask as many questions as you want.Iam sorry,I have heard of your other condition but don't have it myself.If you click on the butterfly on the top right hand of the screen there is lots of info on fibromyalgia xxx

[Janice1965]

Hi Rachael

Yes I have Vascular EDS (vEDS) with hypermobile joints and my two adult children have Hypermobile EDS (hEDS). Which type have you been diagnosed with? Janice,x