Just been diagnosed

Hi there was diagnosed on Monday by my GP.. after weeks of going to doctor and blood test s my doctor told me I had fibromyalgia and gave me a leaflet to take home said there was no point in referring me as he knows its fibromyalgia and there really is no point ...I asked him if he thinks I would eventually be able to go back to work and he said I doubt it...I then asked if I will get back to normal and he shrugged his shoulders ...I then burst in to tear as I have a job I love .. I work for myself doing cleaning and have a lovely clientele which I've been doing for 5 years I feel in despair... he has put me on25 mg of pregabalin twice a day and told me to stop tramadol and co codamal.... but right now I am in a lot of pain all over my body but not sure if I can take a tramadol to help with the pain as I my next appointment is in two weeks .... any advice would be much appreciated and thank you for reading my post xx

[neesey1005]

Hi it took me 4 years to be diagnosed so you have been diagnosed pretty quick -. Some guys on this site do still work so it's possible to carry on but pace. I remember crying with my partner in the hospital car park when I was told I have fibromyalgia but relieved as well that at last someone believed me -. You will need to research get advice and support please don't stress out - it affects fibromyalgia big time. -. You are on the perfect site for support. -. Good luck we are here -. Neese. x

[Hidden in reply to neesey1005]

Thank you for your reply ... 4 years that must of been awful ... know what you mean about being believed my symptoms looking back have been there a very long time but I just carried on through them .... was only when they got unbearable and my legs stopped working that I really got help .... many thanks for your message xxx

[neesey1005 in reply to Hidden]

Yes my main problems are weakness in my legs ( they run out of power) bad days are pain all over and fatigue - but I am drug free now - it's hard but I couldn't cope with side effects of the drugs instead I pace - rest , work, rest, work and I try not to stress I also am wheat free gluten free , no process foods and I swim , walk Finley everyday aqua, and will start yoga end September - more pain when I sit so I tend to stay on the move -. I had to retire got overload - I wish you the best -. x

[Hidden in reply to neesey1005]

That sounds like me with my legs that's how I feel I have no power in them so I shuffle

[Hidden in reply to Hidden]

Thankyou for your reply xx

[mickiedoodle]

Yes diet is a great way to relive some of the symptoms, I eat also no process food, (this has also meant that I have lost weight and this has also helped) have cut out caffeine, and take multi vits and have B12 injections, I do still work full time but have a very understanding boss. I do take co-codamol, Amatriptylin and find that if I keep doing a little bit of walking every day I am a lot better that if I do nothing when I then get sore and stiff and feel even worse. I am determined not to let this beat me and will keep moving every day to try and keep it at bay.

[Hidden in reply to mickiedoodle]

You sound very positive I will definitely try all of the above with the diet thankyou

[neesey1005 in reply to mickiedoodle]

Yes sitting down seems to be my enemy x

[Hidden in reply to neesey1005]

I'm ok sitting for a while it's walking I can't manage... hope your days been ok xx

[MariLiz]

I thought you needed to see a rheumatologist for a diagnosis? But your doctor sounds positive. I am sorry I can't answer you about taking tramadol or cocodamol with pregabalin. A pharmacist ought to be able to advise you about that.

[Hidden in reply to MariLiz]

I did too my partner is coming with me on the 29 th to the doctors and says his gonna insist on a referral thankyou

[Hidden]

You can take Tramadol & Co codamol with Lyrica. You can't take Tramadol & Co codamol together though so it's one or the other along with the Lyrica. I've taken morphine & Lyrica together for years. Lyrica is a neuropathic painkiller. I was diagnosed by a rheumatologist & it took me a year going privately so you did well to get diagnosed so quickly on the NHS. Take Care. Bec

[Hidden in reply to Hidden]

Hi there bec thanks for letting me know that about the medication ... your pain must be bad to be on morphine ... I need to start making negatives into positives and being diagnosed that quick sounds is a positive .... just where I've always been so active and all of a sudden I can't walk it's scary for me ... hope you are having a good day 😊x

[Hidden in reply to Hidden]

Thank you. The morphine isn't for fibro. But what I really meant was that you can take other strong painkillers with Lyrica x

[Fudge57]

The pregabalin can be increased. I am on 600mg a day, split in to 2 doses. You usually see a Rheumatologist for Fibro.And you can be referred to the pain clinic. Just do lots of research and everyone's symptoms can be different. But you seem to have a well informed GP. when I was diagnosed My GP knew nothing!! I have had Fibro for over 20 years xx

[Hidden]

Hi fudge57 hope you are doing ok... my doctor diagnosed me after only seeing him twice the last time after I went to A&E... ( they thought I could maybe have Me and said I need a referral from my GP)he felt my neck and fingers and said he new I had fibromyalgia and I didn't need a referral and to go back on 29th Aug.... i was in tears he was horrible....

Dreading going back to him but I did insist I wanted a referral which he said in the end he would write off but wasn't happy about it

I haven't been able to walk since last Friday ... thank you about medication info xx

[soppysokes in reply to Hidden]

Flower if you mean you literally can't walk it likely something more than fibro? If you mean you can t walk without pain and aching but can walk with those symptoms that's different.

[Hidden in reply to soppysokes]

Hi ... no what I mean is I shuffle really slowly ... don't know why but my legs just won't walk properly... I walk like I'm 90 .... oh and pain too ... going back to docs today not sure what he can do x

[soppysokes in reply to Hidden]

Sounds a good idea.hope you get proper help.

[Hidden in reply to soppysokes]

Thank you