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Fibromyalgia Action UK
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Just diagnosed

Hello Just joined the group.

I was diagnosed with Fibro Nov 17, at the same time I was diagnosed with an immune deficiency.

My life much the same as everyone's is a busy one. I play a lot of sports work hard and try to maintain a social life. I always wondered why when I was ill (which has been most of the time), injured or even after a small amount of exercise I would take longer to heal/recover then everyone else. was I weak? was I not as fit as everyone else? maybe I just didn't have the will power everyone else had? these feeling as well as many others have had a negative impact on the way I see myself, yet I continued to push through (I'm a little stubborn) I never thought for a moment that there may actually be something wrong with me.

After the boss at my current job told me I was not eligible for a pay rise because of my sickness I decided to take action and find out what was going on inside my body. I eventually went private after the GP told me it was normal to get the Flu (the actual flu), shingles and mumps in the space of 2 months. after tests and several hospital visits I was diagnosed.

OMG! I'm not weak, I'm not unfit and I definitely do have as much will power as everyone else. I couldn't believe after all this time I have an explanation! the negative thoughts about myself were unfounded!

My first feelings were sadness and anger, how could I have been let down so bad by my GP, how could I have let myself think all these negative thoughts for so long. Now I'm feeling positive, there are changes I need to make to my life and treatments I need to have in order to get better, but I can finally see the light at the end of the tunnel. I'm not saying that tunnel wont be a long and painful one but I'm gonna do it!

Sorry for my rambling post, I havnt really had anyone to talk to about this who will understand.

I hope you are all as well as you can be

Look forward to hearing from you

Lianna

12 Replies
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Getting a diagnosis is always a rollercoaster of emotions. It's good to know, but sad to look back at the long journey getting there. I hope that now you know what is going on with your body that you can be kinder and gentler on it! I hope you find a way to manage it and to live well. Best wishes to you. x

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Hi Lianna, I can completely relate to your story. It definitely helps to have a name to put to what you're suffering with. I found being diagnosed a bittersweet experience, relief that I wasn't going crazy and there was actually something wrong, mixed with sadness and shock that I had a chronic illness. However once you know what you are dealing with you can take steps to start managing it. I love your positive attitude which will no doubt help you on what can be an unpredictable journey. You have also made a good choice coming here as you will receive lots of advice and support from our friendly members. There is also plenty of useful information and links on our main site so you may like to take a look at this:

fmauk.org/

Also I notice you haven’t locked your post. You don't have to do this but you are likely to receive more replies if you do as many of our members are not keen on responding to unlocked ones, as they can be accessed by people outside the community. Instructions on how to do this can be found on the link below but if you get stuck, please don’t hesitate to ask for help.

healthunlocked.com/fibromya...

So welcome to the forum, I look forward to seeing you around. Take care. x

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Welcome too the forum☺

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Evening and welcome , yes indeed we do feel very let down for years some of us kept going round in circles no answers to how we felt on a daily basis,wondering why after playing our favourite sports , or doing work hours we felt so washed out afterwards and poorly. Then you get a diagnosis , I personally felt a wave of relief , and like yourself aiming to keep positive knowing some adjustments will have to be made. We don't mind rambling it's good to share our feelings and we are in the same boat . Look forward to seeing you around take care xxxx

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Hi Yas cannot work out how to write a post for some reason

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Oh sorry to hear the changes by HU have caused some confusion. You should be able to click on the 'What's on your mind' changed from 'Write a post', find it here via this link;

healthunlocked.com/fibromya...

Hope this helps

Emma :)

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Afternoon sorry I've only just got back to my iPad I see our lovely Emma has already replied to you hope your day is going okay xxxx

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Hi Lianne, must be very hard for you coping with this fibro in the work place. Glad you have found this site the people are lovely, and the thing is every one understands, and you know you are not the only one going through these things, so it is not your imagination xxxxx julie

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Hi there, great to meet you and wish you a very warm welcome to the group :) Oh as no one told you we just love folks who ramble so you ramble away your in very good company xx

Momo

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Welcome everyone is so friendly and helpful on here xx

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Hello & welcome, I'm newly diagnosed, so feeling my way with everything.

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Oh Lianna, oh reading your story brought back memories from when I was pregnant back in 92. I felt many of the same things you are going through now. I didn’t think there was anything wrong with me. I just thought that it was high hormones good for my daughter but bad for me. It never occurred that there was something wrong with me. Yes it was a long painful tunnel and I am just starting to see the light at the end of the tunnel. Reading what you wrote made me think 🤔 back on how some people were so judgmental. They will one day if haven’t already have a big eye 👁 opener. Well sending you a loving hug. 🤗💕

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