Fibromyalgia

[elbeth]

Just been told this week i might have fibromyalgia any advice much appreciated Elizabeth

[Mdaisy]

Welcome Elbeth,

Sorry to here you may have Fibromyalgia but this FibroAction community has very supportive and kind members, so you've come to the right place.

I would imagine you have had a lengthy time of it with hospital visits and tests as we all do but may be glad to hear you can finally put a name to it. On our website we have a wealth of information about Fibro which you may like to read especially our 'All about Fibro' factsheets which you can download & print as reference.

fibroaction.org/Pages/How-I...

You'll be glad to hear that Fibro can be managed using a combination approach including medication, complementary therapies, gentle exercise. pacing, diet etc.

All this information can be found on our website.

Fibro is not a 'one fits all' so it may take a little while for you to find our what suits you. I would also recommend finding out if there is a support group near you as well as using this community. Being able to speak face to face with someone nearby who understands may be helpful to you. Here is a list of independently support groups we currently have in our directory;

fibroaction.org/Pages/Suppo...

Anyway, please read this information at your leisure and until that time.....come on in, grab a cuppa and have a natter. I am sure the other members will be over shortly to say a big Hello, which is maybe what I should have done. Anyway the information is there for if and when you need it!

Happy Chatting !

Emma

[elbeth in reply to Mdaisy]

Thank you for your reply, lots of great info to read up on.. It sounds like there is lots of support here.

I have been suffering with this for many years but have only recently been told by my gp about this condition, as she suspects this is what i have been dealing with. She has put me on medication to help ease the pain

which will also allow me to sleep; it is called tramadol.

Would like to hear if anyone else is taking this and their feedback.

Many thanks Elizabeth

[Evanda in reply to elbeth]

I have been on tramadol for years for other medical problems so it will not hurt. But I take other medicines as well

[elbeth in reply to Evanda]

Thank you for the message

[elbeth in reply to Mdaisy]

Thank you your message

[deejay]

Sorry you have FM, but at least you can chat to others with the same illness. I have FM & costochondritis, I am not on Tramadol, I take a combination of meds ,Lyrica, Amitriptyline and Cymbalta, although I still have a lot of pain, sometime worse than others, it just seems to be trial and error to get the combination that works for you.

Hope to chat to you soon

Donna

[elbeth in reply to deejay]

Thank you so much for message

[jillylin]

Hi,

Nice to 'meet' you.

I have been on tramadol for some time. The extended release version is the best as I find it stops the unexpected falling asleep bit. I used to think it didn't work so stopped taking it. Went back on it as soon as I realised it did help.

Finding the right combination of mediations can be a slow process as what suits one of us might be a nightmare for another.

Hugs

Jillyxx

[elbeth in reply to jillylin]

Thank you for the message

[Gramma]

Hi, I agree with Jillylin. Slow release Tramadol is best and like her thought it didn't work as it's not immediate like some painkillers. I stopped taking it and then realised it was working because the pain was awful. I take it along with Paracetamol and also take Gabapentin and Citalopram. I've learned to pace myself and not to beat myself up when I can't manage something. Exercise was the most difficult one for me as I've always enjoyed quite energetic exercise but now get tired very easily. Fibro is a case of management rather than cure, that's what I found difficult too. I guess we probably get used to GPs offering a cure for ailments but often they are "in the dark" with this too.

Jenni.

[elbeth in reply to Gramma]

Thank you for the message

[Matrix]

My one piece of advice is never dwell on what you can't do but only on what you can.I have had this horrible disease with all the other things that come with it for over 50years .I have had 3 children a happy marriage many many days weeks months years of pain etc but my best hope has always been in God and I suggest a hobby ,I scrapbook and make cards .its a good distraction .Do gentle excersise little and often be gentle and kind to yourself .All the best for your future and we are always here when the going gets tough or even just when its not .xx

[Ginsing in reply to Matrix]

a excellent piece of advice Matrix especially the diversion of a hobby but dont give in is essential and laugh even when you feel like crying Thank you Matrx xxgins

[elbeth in reply to Matrix]

Thank you for the message

[Ginsing]

Welcome to our brilliant site it is full of wonderful people all in the same boat as you. Talk tp them there is lots of knowledge but always remember your GP and Rheumatologist are the best for medicine advice. We also have lots of fun on here if you like a bit of diversion and delight virtual trips and sillyness available.

Looking forward to your posts xgins

[elbeth in reply to Ginsing]

Thank you for the message

[Matrix]

Thanks gins ,its crucial to try and not let it get down .I have had it since I was twelve years and its been tough especially when children were small and yet they saved me too .Take care xx

[elbeth in reply to Matrix]

Thank you for the message

[elliedolly]

Hello welcome to the site. I have been diagnosed for a year but only recently discovered this site. It's brilliant! It has been extremely helpful. The best advice I can give you is one day at a time and try to keep positive as much as you can. I know the above may seem difficult or at times impossible with FM, but hang in there. Bad days drag so much and can bring you down but the good days when they come bring you through! Take care and remember that we are always here to chat to you x

[elbeth in reply to elliedolly]

Thank you for the message

[elbeth]

Thank you all for the messages making me feel so welcome xx

[haribo36 in reply to elbeth]

Welcome to this wonderful site full of very caring,kind and supportive people who will try to help you as much as they can Since I've been participating in this site by reading and replying to posts,and posting my own as well as being "silly" when we have virtual trips it has helped me sooooo much more than words can say.It really has been a lifeline to me as Iam a single mum of two young boys.Ive had fibro for 8 years now and it has severely impacted my life.The best advice I can give is to keep coming on this site,try to pace yourself and get lots of rest and relaxation,minimise stress where you can,ask about doing a pain management programme and find out as much as you can about this condition and how to ease you symptoms which you will find out from other people on here

[elbeth in reply to haribo36]

Thank you for message