PREGABILIN

[mub40]

Hi

My doctor has given me pregabilin to try for the pain.

Have been taking it for 10 days and I feel a bit spaced out.Is that normal with this drug?

[Ginsing]

Hi Mub Yes I think it is quite normal, I think that is why we are introduced to it really slowly and build the quantity as slowly as we can, It is quite a weird feeling isnt it but I find it most effective.

[mub40 in reply to Ginsing]

many thanx

[Maladjusted]

Yes, it is quite normal. It does take a while for your body to adjust to it. As Gins says you have to build up slowly. It didn't suit me, but if for any reason you give it up, don't just stop it (as I did) just as you have to build up the dosage slowly, you have to cut it down slowly too.

Hope it works for you and eases your pain

Em x

[mub40 in reply to Maladjusted]

many thanx for your reply

[Cookie72]

Hi Mub, I'm on gabapentin which is the same family as pregbalin, and yes it does make you feel weird fr a while, but your body will get use to it and in my opinion they are one of the best pills for fibro, but as gins and maladjusted say, you a e to build it up slowly and you decide you don't like it for some reason you mus come off it the same way , it doesn't suit every one, no two people are the same, what suits one may not suit another, but do give it a fair try first before you decide....gentle hug coming your way....Dee xx

[mub40 in reply to Cookie72]

many thanx sending gentle hugs back

[CryBaby]

Hi Mub,

I agree with everything everyone has already said. I was bedridden when I was diagnosed, then was put onto Pregabilin. Been on it fir over a year now. I'm back at work, feel "normal" mist days and my flares are frw and far between. I love this drug, although the side effects aren't fantastic. I'm on 300mg in the morning and 300 at night. As I was increasing my dosage, I also went very gradually, but I still sometimes got the spaced out feeling. Hang in there and be extra cautious until things settle down and of course rest or lie down when that feeling is worst.

Hope it helps for you. It's been my saving grace for sure.

CB.

[mub40 in reply to CryBaby]

many thanx for your reply

[bluebell99]

Hi

I am in the same boat and wondering whether to continue. I have been taking them for less than a fortnight when I had my diagnosis, and whilst they are helpful for the pain, I am not happy with the side-effects. In fact I have stopped the midday tablet as I spent most of the day asleep in the chair. The first four nights I slept right through, but that caused its own problems with stiffness as I wasn't moving in my sleep. Now I am wakening during the night but getting back to sleep quite easily so that is good in a way, although this morning I woke at 6.30, looked at the clock, turned over and went through until 9.00. Cue panic to get the house presentable for visitors!!

I am wary of mood altering drugs after 10 years on one anti-depressant after another, before I had my Lupus diagnosis. This may be contributing to me not giving this a fair chance, but several years ago I was completely zombified on Gabapentin after only 6 weeks, and this is supposed to part of the same family of medication.

My next appointment with the rheumy is not until April so I do feel a sense of abandonment. The prescription is "Take one tablet three times a day", they are 150mg, nothing about increasing the dose slowly, or contacting either the rheumy or GP, so I'm not sure what is expected of me or what to do next.

The rheumy letter has still not reached my GP yet, so contacting him is not really an option.

Any helpful views will be much appreciated please.

[haribo36]

Hi there,iam also on the same dose as you and have also been left to just get on with.I have been on this dose for around 4 years now I think.Although my new g.p did mention recently that I should be taking it twice a day and not three times.When I dropped the midday one I felt aweful so went back to three times a day.I too don't like the side effects mostly the increased appetite and weight gain and wonder whether the fibro sytoms I have are side effects from the pregabalin or just fibro?When I read all the side effects you can get they are the same as fibro symptoms so it's very confusing.I do feel that the pregabalin has helped my pain though compared to how bad it used to be so maybe it is worth it.We are all different so only you will know if it is right for you are not.Could you not contact the rheumy instead of your g.p to just clarify the dose and discuss with him how you feel? X

[bluebell99]

Hi, Just to clarify, that's a 150mg day, not per tablet, sorry for the confusion. x