i have yesterday been informed that the exceptional letter that my GP sent in, and the hard work my CAB disability legal adviser Sally did (analysing my DLA form, dealing with my appeal on my behalf) has paid off. My DLA has been reinstated at the same level is was before (high level for care and mobility) after losing it in November.
I wanted to post this to give other people hope. I was diagnosed with Fibromyalgia 8 years ago, and CFS 25 years ago. I also suffer from regular migraines, sciatica, a dodgy knee, and possible Menieres which affects my balance a lot. i actually typed up a lot of the answers to the form in Word files, so that i could come back to it and edit it when i had the energy, or remembered something extra. Even doing that, i only just got the form to DWP in time for the deadline. I put as much detail into my answers, even if i felt embaressed at how personal the information that i had to give. They dont just want a list of symptoms it seems, they want to know examples of how much this affects you in daily life, and to give detailed examples.
I hope this helps, My carer (mum) now keeps a diary noting dates of every flare up, and i am now flaring up more often, because of the stress this process has affected me, but i am glad i appealed. as long as you have the right support and advice, it is possible, be strong, and dont get disheartened, there are sucess stories - not many, but enough i hope in the end to make the government officials see how bad these 'invisible conditions' affect us. sending hugs to everyone going through this painful and upsetting process xxx