They have found the cause of Fibromya... - Fibromyalgia Acti...

Fibromyalgia Action UK

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They have found the cause of Fibromyalgia in the States!!

Barbie67 profile image
6 Replies

Have posted a link for you x

Would love to celebrate this news but I find it hard to believe :/

guardianlv.com/2013/06/fibr...

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Barbie67 profile image
Barbie67
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6 Replies

Yes it would be nice if they have finally found a cause ... Then they have to find a cure..... If it can indeed even be cured I would be happy if they have could find a cure as it would get rid of some of my pain :D unfortunately today I have seen my GP I have Fibro, chostochondritis , ibs , CRPS, osteo arthritis and possibly sero negative rheumatoid arthritis and I am allergic to every med for both types of arthritis so some relief from fibro would be nice as long as I am not allergic to the cure

Yours VG the awkward :)

Barbie67 profile image
Barbie67

Finding the cause of our illness would indeed be a break through but as you quite rightly say,how many years will it take to find the cure :/

How on earth do you cope with that combination of illnesses? I can hardly cope with depression, agoraphobia, severe panic/anxiety disorder , OCD and the pain and severe fatigue from fibromyalgia/CFS

Sarah x x

Years of practice . A wonderful family, a brilliant GP, this forum, and giving up work,

Somedays I do disappear from here if the pain is really bad ... As I,m in my 40s they don't want to replace my knee yet and I have been told if they do I will still be in pain cos of the fibro and CRPS ... So really I am in a no win situation .. That's why I suddenly break out into stupid posts to keep my spirits up

But you have a lot to deal with too.....so we can support each other on this forum :)

Frangi-pan profile image
Frangi-pan in reply to

Hello V-G :) pleeeease keep on breaking out... I now scan the posts to find your breakouts as they keep my spirits up too! I'm missing my mum at the mo as she was a great one for similar break outs. she too has chronic disease but now in no-man's land of dementia, so keep on keeping on... it's much appreciated

isn't CRPS the pits? haven't found anyone else with it, but there must be many of us

btw...they're not stupid stupid but Inspired posts :D

anbuma profile image
anbuma in reply to

I agree with frangi-pan.pleas ekeep your posts going.they keep my spirits up to tho sometimes its hard when no one in the medical profession wants to listen. All that I have read in magazines and on forums seems to be true.ie after todays appt it proves doctors mistake OC fro IBS and that Cysts DON'T show on scans.my rheumy did not acknowledge the fact that I had lost weight in my arms legs and bum yet gained weight in my abdomen.i felt it wasn't worth saying my stomach is getting bigger as I have mentioned it so many times and today I told him that and that my trousers are getting tighter around the middle-received no comment.since I got home pain and discomfort is unbearable.will try and last the next 4 weeks when he wants to see me again re new meds as he thinks some of it is worry.i am a bit concerned about having the op and the other concern is they aren't listening to me.my thoughts now when i got home from docs was to write another letter airing my opinions.

ladymoth profile image
ladymoth

It's great that they've found the cause of fibro in the States - I hope it's the same cause as in the UK! :O

Moffy x

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