Absolutely exhausted..

[pinot]

Having a really bad flare up. .im so exhausted even at rest in a chair or bed in absolute agony I feel so low and running on empty I just want to die not even got the energy for a conversation. God I just want to bawl my eyes out. My body feels like its carrying a dead weight on it.oh please make this go...rant over xx

[Ginsing]

Hi ,Pinot Hope the pains have eased a bit! If you are still having massive problems I think you should get an appointment this morning with your Doctor for a review of your medicines, it sounds like he needs to see you when it is so bad.! Do let us know how you are? Remember we know what it is like been in same boat ! xgins

[bbstport]

gentle hugs - can you not see your G.P. as obviously you need some help during this horrible time.

Belinda x

[Hidden]

Yes and if you physically can't get into the surgery ask for a home visit.... I developed arthritis 5 years ago and it bougtn on a flare the like I have never had In 23 years and it lasted a month in agony then a further two in great pain ... I was in wheelchair. For 3 months and my Gp came out to see me regularly as nothing seemed to be working.... And there was no way I could have got to the surgery.. So. Please don't suffer and more than you have to and get seen

VG x

[Lizzywizz]

Get your doctor in for a home visit so he can see you in your situation. You are not alone, you will not die, you will gradually rise up out of this flare up and have some respite. I know, it happens to me, I just wonder if it is worth going on at times/ especially as I have suffered most of my life with auto immune conditions and I am now nearly 70 - but I think of the good times I have with friends (special group of people who mostly understand the condition), I do plan and think of outings, doing craft projects, chats and especially my spaniel who is more of a help to me than a hindrance. Please do not despair, all people with disablility are special people, we really are 'worth it'!! Gentle hugs and keep writing, it does help.

[pinot]

Morning grumpy and all you lovely supportive people thank you so much xxx ? for your replies and advice it is so appreciated. Gp not so responsive both just say oh its a difficult illness or poor you...one has reffered me to see a specialist re lupus? ?? Like you grumps I really feel like I need wheelchair support right now.xx this is the worst flair up ive had in years my body feels like a dead weight without anything to hold me up my legs are like jelly it feels like my body my brain and muscles cannot work together all totally out of sync I know I wont die from this but I sure think it would be a blessed relief. My body feels like its trapped in a box I can't get out of.the frustration and the guilt of lying here looking quiet healthy is a great burden people judging u and can't understand why you just can't make more of an effort. Upsets me I've worked hard all my life seldom taking and mostly giving is just so hard but im sure once this flare subsides I will feel better soon. Ps gp won't come out as there is actually nothing he can do so says just rest. Argh!!!! Thank you friends don't know what I would do without you all.xx hope everyone has a good day xxx

[Hidden in reply to pinot]

As soon as you can if your GP won't come out grrrrrrr some GPS make me so mad .. Yes they have lots of patients but they should all offer home visits they work hard but they also get paid a lot ..... They chose that job....

Rant over...

When you can get to see your GP please ask for a meds reveiw there are loads of meds to try for fibro ... Believe me I have tried nearly all... and just when I was getting really despondent ... Bingo my GP found the perfect combo... .i,m in pain daily but I get sleep which helps so much ... Don't give up ask and ask until you find the right ones for you....

VG x

[Tusk in reply to pinot]

Poor you I do feel for you. I have been going round in circles of late to actually find out what the heck is causing me to be so ill. It was thought it must be Lupus or Polymyalgia and I almost wished for positive blood tests but not that easy, they are negative so now they say Fibromyalgia is probably the cause. I was not convinced but reading all others comments like yours has made me realise that it can make you that ill, trouble is synics do not agree. I have been very ill on and off for years but the last 6 wks have been terrible. I just woke up one day and could hardly put one foot in front of the other. I still can't walk well and now I have Shingles all over my nexk and face, I look like a kid with a bad case of acne. I gave up my job after being offfered retirement on the grounds of ill health 6 yrs ago after having a heart attack at 42 followed by bowel surgery and my children have left home so I am lucky in that sense that I do not have kids to see to but I do miss my grandchildren as I usually collect them from school etc and have not been out of the house for 6 wks except to hospital and GP. They do visit but for short periods as I cannot cope with anything for very long at present. I was on steroids as they thought I had lupus but as the bloods were negative they have stopped them now so it is handfuls of painkillers instead. It is very frustrating to feel so ill and not able to see when I will improve and this website has helped a lot in making me understand just how bad FM can make you feel. Clearly you are very unwell at present and these damn Dr's need to be more sympathetic to FM that is why I had wished for a positive blood test at least then they KNOW what is wrong and you get the treatment you deserve. I hope you feel better soon, just take it easy and hopefully you will improve.

Tusk

[Ginsing]

Hi you do sound a little chirpier so this chatter really helps do keep it up when you feel you need to. Have you any friends who could pop around and say hello. Sometimes it is difficult we dont want to be a burden but it is so good to talk is n't it xgins

[pinot]

Thnx gins yes I do have lots of lovely friends and family but at the moment im just to exhausted to even chat to them or sit with them even sitting in the garden is too much is this normal? ?? Having said thar there's nothing normal about fibro.mmm!! My body feels like a tea bag full of holes with all my energy draining out of them..I just find it so difficult to stop fighting this pain and exhaustion. But im sure I will get better soon.xx thnx for your support your are a super star***bless you xx

[Hidden]

Pinot I really feel for you.

It's awful when the pain of fibro is that bad.

But you will gradually get better, relief is on it's way soon even though at this moment

It certainly doesn't feel like it.

But I do agree with all the gang you should see your doc.

Hopefully he will give you a better pain killer and nasty ol' mister fibro will stand back.

Give us an update soon.

Bib xx

[lavenderheart]

hi pinot...............your words mirror exactly how I feel - |I have gradually got worse over the years, tried every med ) and treatment possible and basically seems I am left to get on with it....feeling very down this week as my once lovely house looks like someone has ransacked it and frankly dont know where to start I know it shouldnt matter in the bigger picture but if its always been important to you it wont go out of your head.....children (have 4 from 9-18) dont understand or locked in their own exam=stress at the moment, hubby is either working or asleep hes just had to take on a few part time night shifts as the bills are mounting (we lost our business in 2010 due to my fybro....its a daily battle as I am still trying to be self employed and putting my vintage-wares on website so ofcourse its a battle between the usual housework, ironing, earning a living and my youngest currently waiting assesment for ADHD and he is soooooo hard work .............. Ive sent in sicknotes since xmas but it seems as a self employed person Im not even entitled to go off sick .... no sick pay or ESA for me as they say hubby now works 24hrs per week................like you a feel totally drained...your words you feel like a tea bag made me giggle (not funny I know) but very good description I always think Im like a battery operated toy and the batterys have just died......my energy levels are zilch and my biggest concern, if |I could get this up a bit I would cope with the pain a bit more....I also habve very bad IBS whcih I am this week paying for food intolernace tests via yorklab as Im convinced its something Im eating ..... hopefully it will be and it may even make the fybro better ha ha !! ........I know just how you feel I have got to the stage I cant be bothered sociallising everything is sooooo much trouble.............gp made me refer myself for CBT so dont know how thats going to pan out............gosh so sorry didnt mean to unburden myself ............if it makes you feel better i feel just like you..............sending hugs x x

[geni]

i have been exactly the same, my arms & legs feel like lead every move is total agony, i just want to be left alone to sleep all the time , it feels like i am slowly dying. does the hot weather make any one else feel worse .?.

[ladymoth]

Hi Pinot,

You must insist that your GP visits you, or that he refers you urgently to a pain specialist. How can he say it's 'just fibro' when he hasn't examined you?

It's pretty likely that if you could get some reasonable pain relief, your exhaustion would be less intense.

I feel very cross on your behalf, as I do for anyone who is just left to suffer without any attention.

Lavender is right - if you can get up and move about just a little bit it eases your pain, but how can you do that when you're in agony. Someone needs to call your doctor and make a few demands - they get paid enough FGS!

Hope you feel better very soon.

Moffy x

[Hidden]

What hot weather?!!

No seriously it doesn't seem to make any difference to me.

Hot, cold, raining, snowing, windy. This damn illness doesn't seem to respect me.

Fibro chucks the pain at me irregardless of what the weather is like.

Perhaps other fibromites are affected by the hot weather when it descends upon them.

But that's not the case for little ol' me!!!

Sorry I can't be of any help to you though Gins

Bibi xx

[chiv]

IT IS TOUGH WHEN IN THIS MUCH PAIN, TRY A HOT WATER BOTTLE SOMETIMES IT HELPS, DONT GIVE UP THEIR IS SO MUCH COMMING ON THE MARKET TO HELP, I AM LOOKING INTO WHAT EVER YOU DO REMEMBER WE CARE FOR YOU THE PAIN ON A FLAIR UP CAN BE BAD EITHER GO TO THE DOCTERS IF HE IS NOT A LOT OF HELP GO TO A LARGE HOSPITAL , AS I AM NOT SURE WHAT YOU ARE ON ITS MORE DIFICULT TO SAY WHAT THEY CAN GIVE YOU , I AM A MOTHER OF 4 GROWN UP CHILDREN AND MARRIED 35 YEARS IF YOU WANT ME TO KEEP IN TOUCH AS A FRIEND EMAIL [e-mail] I expect you where awake last night I was talk soon ginax

[pinot]

Thank you all ? so very much for your lovely kind thoughts xxx. .gp phoned telling me to start new meds I told her how I was feeling and she just giggled and said well hopefully the .meds will help! !!!! Frustration lol. Using a heat pad just now been moving around to try and stop me seizing up as I have 3 ruptured discs in my spine and sciatica so my back is in spasms just now im going to have a jacuzzi to relieve the pain a bit n take more meds.my blinking legs are like jelly. I know you are all having a difficult time just now.poor lavender I feel so vexed for you.it must be such hard work for you having younger kids and your oh working to support you all ? it is such an isolating illness at least I can go lie down but you can't. I too am self employed but seems I need to get a job if I want money lol if I sign on they will hound me for work I cannot do.like I need the stress. I have angina and having chest pain just now but trying to see if it shifts.with spray. .keep shinning girls xx

[angib53]

Hi pinot , big hugs to you xx iam like yourself im having soo many flares and called my doc , im now going to pain clinic from next week , having nice weather is effecting me bad also , I too am tired of it , I cant even think straight anymore , I hope it eases for you soon lots of hugs x angie x

[Cookie72]

Hi pinot. sorry to hear that your pains start to subside soon, do you think theres something in the air, Im in a similar boat have pain every where, and cant bear it, its getting me down, I use to have a very high pain threshold but its not happening now, every one on here seems to be suffering somuc at the moment, I just wonder is there something causing us all to have these bad flares all atonce ??? just a thought, wish you all better gentle hugs to you all.....Dee xx

[pinot]

Hi cookie ty for your kind words. .funny you saying that about something else going on I have a couple of friends who are not well at the moment severe flair ups with fybro this is one of the worst I've had in such a long time it has completely wiped me out. I have had 4 chest infections since feb one after the other so maybe that's why? ?? ? oh I really hope you get some rest and respite from your pain.my body feels like its on fire. .I do hope I get some sleep tonight. Lavender and rose oil burning to soothe my weary soul.nite nite sleep peacefully. .angels on your pillows hunni.xxxx

[pinot]

Hi angie im just like you hunni.xx it is so hard at the moment the heat makes me feel worse.pain clinic for injections just waiting for my appointment. Praying its soon.sending gentle marshmallow hugs to you xx angels on your pillows xx gbu ?

[pinot]

Poor tusk my heart goes out to you hunni.xx ? I've been diagnosed with fybro years ago with many other conditions too.had blood's done 2 weeks ago and had high inflammatory markers.so just waiting to see what happens now. Right now I could simply die to be free of this pain but I know that is not a good thing to do . Maybe tomorrow will be better.please God. Nite nite angel's on ur pillows xxx ? sleep well x

[Pauline31]

Hi..I only saw saw your posr!..how are thngs with your health now? x