Submucosal fibroid - any experiences ?

[CarlottaD27]

Hello,

I’ve got myself into a panic as my pelvic ultrasound results were sent to me, but I frustratingly don’t have a follow up for a Dr for about three weeks!

The report showed said there was a submucosal fibroid >50% intracavitary of 5mm.

Googling led me to think it would likely need removing with some risks to the uterus involved in the operation. Plus a number of months recovery needed before it would be ready to try to get pregnant.

I was getting ready to start IVF and beginning to feel optimistic about it all, but this has really thrown me and my plans. I really struggle with all the unknowns and lack of control on this all consuming journey for a baby.

I was wondering if any ladies had any experiences they could share?

I’ve been so grateful for the lovely people who reached out with advice and support on this forum in the past - thank you xxx

[CarlottaD27]

sorry - correction - I meant mm not cm! That would be scary!

[Poop84]

I had one removed 5mm submuscolus fibroid last week and was told to not wait too long for a transfer as it helps serve like a scratch. X

[CarlottaD27 in reply to Poop84]

hey Poop84 thanks for sharing that! Good to know you can go ahead with transfer soon as I was worried there would be a three month or so recovery time! Was your dealt with quickly on NHS or did you have to pay for a private one? Good luck for next transfer! X

[Poop84 in reply to CarlottaD27]

think it depends on the fibroid and biopsy results after yours sounds as small as mines

[Poop84]

hey lovely so my private clinic referred me to his friend ) nhs ) but the wait is 6mths for fibroid removal if it’s polyp it can be removed as outpatient I waited 2 mths for that app to be told it’s a fibroid and they need tinott it me to sleep to remove it.

I then went back to square 1 and my old clinic t e moved it privately..

Sorry re typos I’m out inthe rain running xxx

[CarlottaD27 in reply to Poop84]

thanks so much for the reply lovely, especially on the rain 😂 really appreciate it because it’s been scary news with nobody to ask about it so far (apart from you!)

I know 5mm is quite small - did Drs think it could be impacting implantation? Part of me hopes at 5mm it might not need taking out … but I would obviously do the op if it was recommended! I’m also hoping my work private insurance will cover it as the op doesn’t look cheap! X

[Poop84]

you should absolutely have it out especially if you’ve had failed implantation before. Mines was at the top of my uterus in between the tubes so the dr said for sure it’s right to have it out. Ask away! X

[CarlottaD27 in reply to Poop84]

sorry, one more question! You said the op acted like a scratch - so you didn’t have to wait three months to heal before a transfer ? Just wondering what that was as I’ve been reading about people being told they have to wait at least three months before TTC again or transfer ! X

[CarlottaD27]

thank you, good to know it needs to come out as I’ll have to plan for that! I had hoped since it was so small it might not impact implantation - I haven’t actually had a failed IVF implantation yet but I’m gearing up for my first cycle, so I guess I’m glad it was spotted before x

[Poop84 in reply to CarlottaD27]

you could have a transfer and then see if it works then decide to have it out. My biopsy was fine and my procedure too so been told I can have my transfer in august or sept if I want to. I’m not quite sure though. But will see.

The fibroid removal creates inflammation so could be used like a endometrial scratch so helps the embryo stick.

I’d recommend maybe having a transfer first then seeing if you need it out.

X

[Poop84]

also if you have any ivf questions as it’s your first cycle feel free I’ve had 3! Egg collections

[CarlottaD27 in reply to Poop84]

thank you for sharing all that info! I’ve got a low amh and considering doing some embryo batching and pgt-a testing, so I’m coming to realise it could well be a long journey. Makes me think women who get pregnant naturally after just a month are living in another world to all this. Will see what the dr says about the fibroid, you’re right I could try a transfer but I’m also not sure how many embryos I’ll get - so much to worry about isn’t it ?!

Hope you managed to get some answers as you’ve gone through the three cycles? Fingers crossed now you’re fibroid free and hopefully have some good quality embryos to transfer … x

[Poop84 in reply to CarlottaD27]

yea I have discovered I have nk cell issues and they affect implantation so have to have a special transfer plan. I did two transfers and then realised this. But it’s good to know. And then crack on. X

[Poop84]

I have the same low amh I’m 37 and had an embryo batching cycle to pgta test them. We have a few normal but will try to transfer 1 and see what happens. It’s not an easy or straight forward journey for some. Some women are lucky and ivf works the first time some not. I guess my advice would be to see how you respond to your first cycle or how many eggs and then how many embryos. Then decide if you want a transfer or to collect more. With pgs the more the better as not all as normal given age etc.

how old are you?

They don’t always recommend pgta for first cycles so do your research etc I’m here if you have any questions xx

[CarlottaD27 in reply to Poop84]

thanks for sharing that, it does sound like you’ve had to be patient with your journey but I definitely think pgt-a sounds like a good idea given the success rates and that it can help you rule out other problems.

I’m nearly 34 so pgt-a wasn’t originally recommended to me, but then I thought if I’m batching and freezing (due to low AMH about 6), and the fact I’d love to have more than one child (although right now just one would be amazing!!) so it made sense to only transfer euploids… my partner wants to go ahead with transfers instead of batching as he’s sick of the fertiliry journey and wants a baby asap - so it’s all a bit of a debate! Now there is a fibroid we may have to freeze and batch after all …

I’ve also got the added pressure that were self financing most of it so all the decisions always have that cost element too!

How far are you with batching? Im guessing you’re testing to make sure the other elements like the uterus are in good condition for transfers? Following u now on here as I may be going down a similar route and hopeful for you! X

[Poop84]

hey lovely so I’ve batched now did that all year last year! Feels like a long journey but hopefully worth it. I’ve had all the testing available now so nothing left to do other than have a transfer and lose some weight and or the healthiest I can be.

I would say see how you respond first with your first cycle. I have even lower amh than you when I was 35 it was 3 then went down to 2.8 and I still got 6/9 and 8 eggs each time. So not bad given this. You may get even more but the main thing is quality. ❤️🙌🏼I’d get on with egg collection first and then have your fibroid out. X

[CarlottaD27]

That’s fab news to hear you managed a decent number of eggs with low AMH - gives me hope were you on an aggressive protocol ? Think I will be in short 300 meriofert but not too sure if that’s pretty standard or not! Good advice - I’m hoping to do a collection next month or so while I wait to hear the plan for the fibroid

Sounds like all the odds should be in your favour now after all the testing. I’m also trying to eat more healthily and cut done on sugary snacks but it is tough, especially as I need a pick me up after a bad day (or another baby announcement!) best of luck x

[Maybe1982]

Hi CarlottaD27.

Sorry to hear about your fibroid.

I would advise you to have a conversation with your doctor and take from there. Google sometimes leads us to misinformation or interpretations.

I’m got fibroid on my womb and I wanted to remove it first before start of the IVF but with my age and time to recover I asked my doctor if it possible to start ivf without removing the fibroid…

He said yes, and today I’m 20 week pregnant 🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽 this journey is not easy but who knows?!obviously we are all different but nothing better to talk with your doctor.

I’ve got my fingers crossed for you and wishing you all the best.xxxx