Game Over

[MyPatronusIsACorgi]

Just received the worst phone call, all 5 of our embryos have come back as affected by Huntingtons. We’ve had nothing but bad luck during our whole PGD IVF journey…I feel utterly numb.

This was our final NHS funded round and with the higher numbers we hoped this time would be different. How wrong we were. We can’t afford another round now and even if we could there’s no guarantee it’ll work. I’m now stuck with deciding to try naturally and having to risk going through this heartbreak again but with a 12 week pregnancy. I don’t know what to do.

I hate all of this.

[DianeArnold Partner Nurse Fertility Network UK]

Hi MyPatronuslsACorgi. Oh my poor girl, you must be beyond gutted. I do hope you have plenty of support around you just now. I am going to reply with my sensible head on, so please forgive me if I seem hard. Just look at what you have achieved. You have desperately tried everything to stop Huntingtons being passed on, but in spite of all you have been through it wasn’t to be. Of course , you could save up and try again, or perhaps use an egg or sperm donor to have a family. Obviously, I don’t know your background, but realise how incredibly brave you have been, so I wish you both every success with any treatment you try. Diane

[Skittles11]

I'm so sorry to hear this, that news is devastating and can totally understand why you feel numb. I had a similar situation last year in a cycle where I had two embryos go through PGTA testing, both came back abnormal so it was round over. When you put yourself through so much and you also have to get through that "extra step" of testing you expect to lose a proportion of the embryos but when they all come back this way it is utterly unfair. I recall feeling numb as well. Xx

[Citizenerased83]

I'm so sorry for the difficult news you've received. I can't begin to imagine how you're feeling. It is completely unfair. I don't know whether it's worth trying to make the case for another round of NHS funded treatment to your clinic as you're in a difficult position with Huntingtons. Sending you hugs and good wishes. Be kind to yourself. Xx