Help - Any similar stories and outcomes? 💔 Possible FAILING /NON VIABLE pregnancy!

I’m really reaching out to anyone whom may have experienced something similar. I had a FET on the 14th of June found out we were pregnant on the 22nd and lines continued to get stronger and stronger. I started having strong cramps and back pain around 4weeks 3 days this carried on for around 3 days so I thought it was over. Because of this I had a blood test to check my hcg levels and to my amazement they were good for the weeks I was. However I then started to bleed. (Literally a few hours after the blood test) The bleed was for around 3 days. After the bleed my levels went from 808 to 1500, because of the bleed they sent me for another hcg this then went down to 800. So we knew or thought it was over(again). We of course went for another blood test few days after and my levels doubled again back up to 1600, so I was now at risk of ectopic.

I was the referred to a local EPU and sent for a scan at this point I was now 6+3 on the scan all they could see is the sac but nothing else however it was in the correct place so no risk of ectopic. I was then passed a miscarriage leaflet and said to come back in 10 days but In them 10 days it’s highly likely I would miscarry and nature would take its course.

Well I did bleed for about an hour very heavily and I passed something quite large but did not look like the sac. (I’ve previously had an early miscarriage) but I thought ok that’s it it’s over.

Returned for my follow up scan on 21st of July expecting them to say it’s all gone and send me on my way. Well this wasn’t the case, the sac had grown the yok sac is now visible and there is now a fetal pole, albeit small but it’s all there in the correct area. I would have been nearly 8 weeks at that scan, the nurse said there is everything there but sadly no heartbeat which of course there won’t be as it’s not grown at the rate it’s meant to so the pregnancy is unlikely to be viable. If I don’t miscarry between now and another 10 days then I guess they will have to intervene? But I was again sent on my way with another leaflet and not many answers.

I’m not silly I know this will not end well but I just want it to end, I’ve been living this nightmare and been up and down now for well over a month.

Has anyone had this happen and if so can I ask the outcome and what they will do and what to expect? What is even more of a mental torture my pregnancy symptoms are getting worse my boobs are getting bigger and more tender etc. i just want to be able to grieve and move on from this 💔 . Also why have I bleed so much and not miscarried yet? How is it still growing after all the bleeds. Sorry for the long post just in a really horrible place and was hoping someone could relate and add some support xxx

[Ses777]

Hi Sammy, I’m so sorry to read what you are going through. I’ve just posted a very similar story! Are you to go back for another scan? One of the hardest things for me is the fact that in till this is over I can’t even begin to heal and move on. It’s been 3 weeks now since we were told there was no fetal pole and heartbeat. It just feels so cruel that it has to be so drawn out. I haven’t even had a spec of bleeding but feel there’s no hope as my symptoms all stopped. I’m so sorry that you are having to go through this, thinking of you xxx

[Hidden in reply to Ses777]

Hi Ses777 oh I’m so so so sorry you are also going through what sounds like a similar experience. I’ve just read your post and it’s truly heartbreaking and it was also our one and only frozen embryo out of 3failed cycles. This is honestly the worst pain I’ve ever felt as it’s been so up and down and when we thought it was over we are kicked in the teeth again and left in limbo.

I was told to come back for a scan on the 1st of august )what will be around 10 days since our last scan. They have told me to expect the worst as it’s very unlikely there will be a HB but I will be just over 9 weeks on the 1st august.

What are the next steps for you? I’m thinking of you and sending all the love and I’m sorry again you are going through this. After the agony of getting where we are for it to be taken away is just so cruel 💔 xx

[Ses777 in reply to Hidden]

Thank you so much for replying. Honestly it’s just so cruel. I’m devastated for you. I think to miscarry is so horrendous but to have it drag out week after week is just unimaginable pain. I just lay in bed for a week crying, then we went for our EPU appointment to manage the miscarriage only to suddenly see something that hadn’t been there before. At first we were full of hope thinking it had all been a mistake but we’ve been repeatedly told that it’s a failing pregnancy and there can only be one outcome. When I found out I was pregnant I obsessed over bleeding every time I went to the toilet but now I wish for bleeding as I just want this to be over. I’m terrified of going for our scan on Thursday and seeing that there is still a heartbeat but that the pregnancy is still not viable. They did my hCG last Thurs and it was 13000 but we don’t have anything to compare it to as last time it was taken it was end of June and 955. I think that it was a lot higher but it’s coming down because of the symptoms disappearing. Do you feel there’s any hope for you as you still have symptoms? Please keep in touch, I’m always here if you want to talk. Thinking of you and sending lots of love xxx

[Hidden in reply to Ses777]

Honestly I have no words. I resonate with everything and it’s just awful. Honestly I’m so sorry for your pain and as you probably do I just feel so numb and I’m finding myself hiding away from the world 😔

The sad thing is I was told to stop progesterone after I bled the first time even before they did a second hcg which looking back now I feel they shouldn’t have made this call? What if this had an impact. I guess as you haven’t bled, have you been told to carry on with meds?

I’m also worried, as they have no clue what the bleeding could have been and the clots I’ve passed this is another worrying factor.

The way they have spoken to me, it’s pretty much over but they haven’t said it yet in clear words but they also said it’s just not looking like it’s viable pregnancy as I should be showing a HB by now at 8 weeks and the fetal pole is measuring too small. But the fact it’s grown in the 10 days just baffles me. As I’m sure your the same but when you see that you cling on to that glimmer of hope.

I haven’t had any hcg levels taken since the first few at between 4-6 weeks So I have no idea if they are at a good level or decreasing or anything. I do feel it’s been all over the place being told I’m miscarrying to not, being told it’s ectopic and it’s not then a miscarriage again and then not, it’s been relentless and just complete limbo for well over a month now.

It is weird my symptoms have not reduced my boobs are getting more tender as days go on but I guess it is growing but just not the rate it’s meant too. So like you I’m so scarred it will come to my scan and they say yes it’s there but it’s just not the size it’s meant to be therefore we have to intervene. I’m 99% that will happen for me 💔

I’m echo you, I’m here to lend a ear. Any questions if you just want to vent. I’m thinking of you Thursday and please keep us posted xxx lots of love xx

[Ses777]

One of the things I struggled with was the adding on 2 weeks to put IVF pregnancies in line with ‘normal’ pregnancies. I kept thinking you are saying I’m 8 weeks but really I’m only 6 so no wonder my scan is looking like a 6 week scan! But I know I was just clinging on to false hope that there had been a huge mistake. My embryo transfer was just 3 days before you and was a 3 day fresh transfer. My first hCG after the 2 week wait was too low to confirm the pregnancy so we had to wait another 7 days to confirm the hCG had risen so I’ve always felt we were just running a bit behind. I just know it’s not possible for the pregnancy to be continuing because all my symptoms went. I’m the same, just want to hide, I’m either on the couch or laying in bed. Honestly feels like I will never be happy again 💔💔 Take care and look after yourself. I’ll let you know what happens on Thursday xxx

[Hidden in reply to Ses777]

Take care of yourself and I’ll be thinking of you 🙏❤️ Xxx

[Lk2604]

Hi there,

Apologies for jumping on this post. I am going through this just now. Following a fresh transfer on my second round of IVF I had an early scascan at 6 weeks and there was nothing there and I was told it was a chemical pregnancy. They did a Beta and my level was 5900, I was told to stop all meds and had to go back last friday for another beta, at which point i had started pain in my lower right side. The results of the beta were 8950 and they were concerned about an ectopic so I had another scan. The sac had appeared at this point but was small and they couldnt confirm a yolk. They were worried it might have been a pseudosac and I was taken back on Sunday for another beta and scan. Levels rose to 13400 and scan now showed a yolk. The consultant confirmed nonviable pregancy and I was to expect miscarraige. This will be our 5th loss, and i have still not started to bleed. I am 7 weeks today.

I just feel so lost, I am so confused that somehow my body is maintaining this pregnancy without any suppprt. And i feel guilty for wanting it to be over as I feel like I am just giving up.

I am 36... and i just dont know if i can do this anymore. We have 4 frosties and i am terrifed this will keep happening. 😔

[Hidden in reply to Lk2604]

Hi Lk2604, firstly I’m so so so sorry to be reading this and for what you are going through and have been through. 5 losses is just devasting, have they looked into why this could be happening?. It’s just heartbreaking and pretty much identical to what I’ve recently been through. I was back and forth with scans and blood tests over a period of 2 months and it was torcher. I was holding on to this glimmer of hope as every scan it had grown but sadly just not enough. You are not alone at all and please don’t feel guilty for wanting it to be over, I too felt this way and I’m sure many woman would agree. When you are told it’s non viable but still feeling all symptoms it’s just dragging out the inevitable. I felt numb for many weeks after and then it hit me like a tonne of bricks, I feel only now I’m beginning to get the fight back in me after some investigations I finally has some answers to go again.

I sadly was not going to miscarry and had to have my baby surgically removed at what should have been 10weeks which was a horrific experience but I’m glad I went for this option over the tablets. Can I ask what they have recommended for you? Have they said sit it out with no other options?

I’m also 36 (soon to be 37) this was my second loss and one CP. 3 full cycles and one frozen. 4 transfers in total. I was also ready to give up but please give yourself time, you need time to heal to grieve.

I’m so sorry again you’re going through this, if I can help in anyway, any questions please ask 💗

[Lk2604 in reply to Hidden]

Thanks so much for replying, it has been really tough in all honesty. I have had lots of tests through the NHS and also privately and whilst my diagnosis is unexplained infertility. I do have a few blood clotting disorders, MTHFR and boarderline high NK cells. I was taking steroids and fragmin to help with this and I think maybe that's why we got as far as we did this time. I also had a microbiome imbalance which was treated with antibiotics and probiotics before and during my cycle.

I still seem to have symptoms, sore boobs etc which is difficult. Things haven't started naturally yet which I am struggling with as I was taking so many meds to maintain the pregnancy and I have stopped all of these with a week and it seems my body is holding on without any support.

EPAC were in touch yesterday so they have booked me in on Monday to have some meds to help bring things on and I will stay in hospital until they pass so we have a better chance of collecting the tissue for genetics. I am worried it will happen at hoke before then though. We weren't willing to take the risks with an MVA or D&C albeit there is a small chance of anything going awry. I just feel like I have had enough bad luck and I don't want to add any other complications.

I really dont know where to go from here. Do we try 1 frozen transfer and see how that goes. Then decide from there? Having our 4 frosties PGT carries risks through the thaw and refreeze. Our NHS clinic don't offer it so I will need to have them moved too.

We spoke to the private clinic also and there are some other things we could do in terms of ERA, hysteroscopy etc. There isnt a lot of positives to be taken from this but this cycle did go much better. This is the first time we saw a sac and even though its non viable my body seems to know what it needs to do. I feel like I am sounding super dramatic and I know I maybe need to just hold on and try again. In the grand scheme of things I am only 3 years in and 2 IVF cycles and after 2 transfers. Its just your while life goes on hold.

Thanks again for replying... and I am so sorry you have been going through all this too. Its incredibly difficult 💔❤️‍🩹