Iv had 5 fresh and 2 frozen I do have a son from my 3rd fresh round since my son Iv done one frozen and 2 fresh all with double transfers my natural killer is high so I do have nk meds i also have a scratch.........I’m just feeling abit what next where do I go from here the most frustrating thing is I know it can work I have a low ovarian reserve but I get a descent amount of eggs and this last round was actually the best quality better than when I had my son......I just starting to feel a bit lost has anyone else had anything similar or any ideas on what to do from here ?
Sorry for all the failures, and i dont have any experience either, just to tell you that i feel your pains, pls dont get mad at your self, you are strong indeed .
I want to tell you that am available if you need help ❤❤❤❤❤❤be strong and treat your self good
Ah thanks you it’s just soooo frustrating half of me thinks give up the other half thinks carry on I can’t seem to get any answers apart from I’m just unlucky ☹️
I can really relate to this feeling! I’m sorry I can’t offer any advice but just wanted to say I’m sorry that it hasn’t worked again - sending big hugs xx
Hi don’t have no advice, amazing news about your son. We have had 3 fresh and 1 frozen. 2 MC’s and 2 BFN’s, I’m similar as last time my AMH was checked it was 6.1 which for my age is on the low side. I took 4 months of DHEA which gave us 2 frozen from our 3rd fresh, we never had any to freeze. I have endometriosis so thinking of having additional tests done before moving on. Where did u have your testing for nk done? I’m also looking at further immune testing. Did u or the clinic do anything different for the cycle which gave u your son? I’m trying to find the strength to keep going, your amazing to get this far xxx
Funny you say that because I just ordered some dhea today I will try anything at this point! My Amh is very low for my age on paper all my test results say I shouldn’t respond to ivf but I alway get 8-9 egg they all fertilised and 6 made it to day 5 I transferred 2 4ab but had nothing to freeze !however this round I didn’t take my immune suppression I couldn’t because of Covid it was a risk that didn’t pay off the round so my cycles have never been the same as I did with my son I think that is what makes me want to keep going! My clinic does the immune testing they send it to Chicago it’s not cheap! All my ivf has been self funded so it a lot! I have also been. Pregnant 3 times naturally but all ended in ectopics one of them being 4 months after having my son so I know my eggs implant what dosage of dhea did you take? Xxx
Consultant advised 75mg a day, I didn’t really have any side effects apart from oily skin. It definitely made a difference for me as I ended up with 3 to freeze which I didn’t the previous cycles. We’ve been lucky enough to have had 2 fresh attempts on the NHS both BFP but ended in MC. Private clinic certainly changed it up but not had a BFP with them yet. Only 1 3AC left to transfer. When did u get tested for nk? I’m in Scotland so I know I will have to travel for any further testing. Feel like it’s our only option, don’t want to try again at our private clinic without ruling out possible nk or other immunes, it’s think it would be a waste of money xx
It’s all very frustrating I try not to get to caught up in embryo grading as when people get pregnant naturally it’s never graded! I had my immune tested befor the cycle I got pregnant with my son I do 100% believe in it x
I think sometimes it’s just random. My first cycle was an epic fail. 9 eggs but none to transfer. Second cycle 15 eggs, 8 highest quality blastocysts. First took and now a gorgeous toddler. Four FETs of the same batch with expanding blasts all BFN. No one expected this.
I thought I’d never got to use most of them, blatantly assuming I’d fall pregnant with first or second FET. I’d have called the third unlucky - I was way too confident I would be pregnant before. Well, four epic failures later, we’re just hoping it’s fifth time lucky!
I have no advice as I am in the same situation as you, many transfers many failures ... what I can say is try to stay positive and if you have money and strength keep going... that’s what I am doing. My doctor has warn me that this road is very hard for some women and just to keep going if I can. I also have a problem with NK cells, it is a nightmare 😔 sending you warm regards x
It is really hard ... I am preparing for my transfer and I already have a feeling that something will go wrong. May I ask what your doctor said about Prednisone? Why you could not use it. I am on 10mg now and will be at 20mg around my transfer. I have asked about the danger with Covid being around but he said I would have to be on much higher dose for it to be dangerous... don’t know what to think now 🤔
And replying to your last question, I think it is actually down to luck, one day everything falls into place and you get pregnant. I am still waiting for my time x
I'm so sorry to hear your news. I am about to embark on my 6th transfer end of Sept after a MMC and 2 chemicals. I had the chicago blood test but as you say it's very expensive, it did show that I have high levels of toxic cytokines so I am prescribed intralipids and high dose steroids,although not sure if I will be allowed the intralipids,will have to see what government guidance is then. This cycle I'm also going to be having additional progesterone as an injection, aspirin and clexane. It's really just the additional progesterone this time as ive had clexane and aspirin on previous cycles. I've done a lot of reading on immune issues and I've changed my lifestyle by exercising more, trying to destress by doing mindfulness and saw a nutritionist who tailored a diet for me from going through my medical history and recommended various supplements to rebuild my immune system. It's all been additional cost as like you it's all been self funded. I will also be having accupuncture on the lead up to transfer.
Hope this helps and wishing you the very best xx
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I have the same however last cycle I wasn’t allowed any nk meds at all I guess it’s my own fault for going ahead without them god know when we will be allowed them again xxx
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To be honest I got the furthest on my 1st attempt with no intralipids or steroids so who knows what impact they have. I can totally understand why you went ahead without them, I would have done the same but my clinic is abroad so weeks ago i booked a flight for end of Sept in the hope flights would have resumed, my clinic are still recommending the protocol but.I have my intralipids in UK so it maybe that I just have the steroids xx
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Iv done one successful with nk med and one fail with nk med so who knows sometimes it’s feels like one step forward ten back I know this sounds silly but I believe my problem is always day 5 after transfer I wake up and can feel all the hormones gone I start crying a lot and just know it’s all over x
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That doesn't sound silly at all, I think going through this we are so in tune with our own bodies. Are you having a follow up with your consultant? Xxx
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I have it next Saturday and I’m going back to my old consultant he specialist in recurrent failure my consultant at the moment is very much all about the science data and statistics x
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Hopefully he will be able to shed some more light, would you mind letting me know what he suggests x
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Of course I will I’m going to really push him I don’t believe embryo quality is a answer that’s just my opinion But I feel it more to do with protocol I need to change it up abit not so much the stims but what I do after egg collection I need to go with my gut after all it’s my money not there’s xxx
I am sorry your round failed. I think its great you know you can get pregnant and sustain a pregnancy but understand its difficult to think positive at times like this.
I have to say sometimes there just isnt anything else you can do.. sometimes it is just a numbers game and a bit of luck thrown in. My clinic are kind of anti a lot of these extra tests etc as whilst they get a lot of coverage on here a lot of them are unproven.
I dont have any words of wisdom but I just wanted to say I really hope you find your fight again soon and get lucky with your next round xx
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Ah thank you I will go again and see what happens the funny thing is the person with all the answers is my son only he knows why he stuck around 😂x
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How true! Wish he could tell you!
its not quite the same but if its any consolation I am about to do my 5th fresh round, I've had 3 BFNs and one MMC. Ive had 3 other MMC naturally. No one can really tell me why and my clinic just keep saying 'keep going and it will happen eventually'. So thats what I do! xx
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Have you tried taking low dose aspirin I understand what you clinic says as “extra” aren’t proven but I also believe that it’s a fact not the same standard ivf works for everyone sometimes you need to change it up slightly my first clinic wanted me to stick to the same protocol over and over again until I got lucky but that’s easily said when it’s not there money so I changed clinics and found someone who was willing to change it up abit x
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Thank you - I take aspirin and I am also on blood thinners from ET as I was found to have sticky blood - we hoped that would stop the MC but sadly I have had another one since despite that.. Hoping a break (due to covid) might be the boost my body needs, been on Ubiquinol and fish oil and various vitamins. I did try DHEA but it gave me terrible insomnia, really greasy hair and really screwed my periods up so I stopped taking it which I was a bit gutted about but figured it wasn't doing me any good x
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That’s my next step Iv just ordered some dhea it’s surely can’t hurt at this point I’ve learnt to not let it consume my life I eat well most of the time 🙈I hardly drink but I think it’s more about mind set and just being happy within your self if I’m honest every time I got pregnant naturally I was drunk and smoking! It ended in ectopic but that’s because my tubes are cr*p I even got pregnant with twins one in my tube and one in my womb naturally unfortunately the one in my tube killed the one in my womb with toxins x
I'm so sorry to hear this, I wish there was something I could say to make you feel better but it's just all so unfair. The one thing I would say you have done so much already, gone through so much, you must be incredibly strong and brave and whatever options there are available I am certain you will be able to take them on. Try not to lose hope I know how hard that is, but maybe take some time to process things and then find your next option to try again. Good luck xx
For me I always found with double transfers it never worked...had better luck with my single transfers. I had mixture of things on this successful round...sometimes I do wonder if it was just luck or all the bits ppl tell you to do...which i did...take time off eat well exercise acupuncture supplements...i had intralipids after egg collection. Good luck xx
It’s so hard to tell isn’t it! I just try to do what makes me happy I eat well but if I fancy a takeaway I have one because when I got pregnant anything healthy make me sick I lived off take away for 9 months 🙈
My bfp with my son I done nothing I actually sun bathed everyday which is something they tell you not to do the past 2 failed cycles I took it easy for the first 24 hours and just went on walks and took my son to the park x
I didn't do anything in my 2ww...don't regret anything because at that time you did what you thought was right...I just cooked slept did cross stitch...I even got annoyed with my MIL...she's overbearing and needed to be put in place ...lol xxx even during stims I went for walks but that's it...I was worried abt twisting ovaries with large developing follicles...two months before stepped up yoga to three times a week...weekly PT for one month before...once process started froze membership and took it easy...
I think because we have ivf we massively over think it I’m guilty of this but once the embryo goes back in if it’s going to stick it will regardless Iv never known anyone naturally lie down for two weeks while trying x
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