Cancelled treatment : I emailed my... - Fertility Network UK

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Cancelled treatment

Chegotsi profile image
46 Replies

I emailed my clinic this morning to check for the timing for my appointment only to be told that they have paused all treatments. They didn’t even bother to inform me, I have been taking steroids and injections for close to two weeks now. I am gutted, I feel so let down. The corona virus is hardly impacting my current situation either because my husband and I have self isolated just out of protection for this cycle. I stopped work to focus on this round and it seems as though We won’t be starting again until after everything settles (after summer). This feels so cruel. I can’t even understand it all. I haven’t stoped crying - it’s so unfair. It’s our third and final round and I have had to really use ALL MY ENERGY to talk myself into going for this round. I just feel really down. My husband doesn’t get it - he keeps telling me to focus on the fact that I am safe but my whole life has been turned upside down since we started this IVF process. I just feel so alone.

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Chegotsi profile image
Chegotsi
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46 Replies
Chloettc2020 profile image
Chloettc2020

So sorry to hear this love 😞. Xx

Chegotsi profile image
Chegotsi in reply toChloettc2020

Thank you Hun! X

RhinoCat profile image
RhinoCat

I am so sorry that your clinic let you go through all of that without revealing their plan of action. I am so sorry 💐💐💐💐💐💐

Chegotsi profile image
Chegotsi in reply toRhinoCat

Thank you Hun. X

Maggiemooi profile image
Maggiemooi

It is a total nightmare, I was told my EC is booked for Monday but still expecting them to cancel any day - or I will turn up to find it is cancelled and they never bothered to call me! I’m only first cycle and it has felt like a marathon struggle - can’t imagine how painful it is after two - in fact can not contemplate my EC being cancelled after pumping myself full of chemicals for ten days. I am avoiding people because I just cry on complete random strangers at the moment 😭

Chegotsi profile image
Chegotsi in reply toMaggiemooi

Try and get in touch with them if you can, I kept calling until someone picked up. I got an email from a private clinic that I had been to for endometriosis diagnosis and they are continuing their treatments (for all those who had started already) it seems the NHS treatments are the ones on hold. I have got a migraine from all this, like you I am full of hormones 😫 we have to just stick together, it just feels like when it rains it really does pour down! Thinking of you anyhow! X

Maggiemooi profile image
Maggiemooi in reply toChegotsi

Doesn’t it just! I have my final scan at 8am tomorrow morning so fingers crossed I’m still on track for Monday but anything can happen between now and then! Staring longingly at the wine but will have to settle for a tea 😫😫😫

Chegotsi profile image
Chegotsi in reply toMaggiemooi

Wishing you the best of luck and sending you prayers. I plan to binge on junk this weekend, I have been dying for a nice McFlurry. I will start eating healthy on Monday! I deserve the treat! Let me know how you get on for Monday! Xx

Maggiemooi profile image
Maggiemooi in reply toChegotsi

EC booked for Monday and still gave the option for fresh transfer - worst case scenario would be a freeze all (or having nothing to freeze obvs!) The clinic has cancelled all new cycles and apparently I am one of the last to have EC next week so feeling pretty blessed right now tbh.

Chegotsi profile image
Chegotsi in reply toMaggiemooi

That’s amazing! Stay safe and isolated though. Protect yourself. Let me know how it goes on Monday! Praying for you! Xx

DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK

Hi Samosa. I wish I could offer you words of comfort, and yes, it is so cruel. The reason is that they are redeploying nurses and saving stocks of oxygen because of the Corona virus. Ladies paying privately, but using NHS facilities are suffering too. I have been speaking with so many heart breaks over the past few days, it’s been dreadful. Be brave, and continue doing your best to avoid this virus. I hope you’ve got plenty of support just now. Thinking of you and sending much love. Diane

Chegotsi profile image
Chegotsi

Thanks Diane for your encouragement. X

Bing84 profile image
Bing84

So sorry for you esp as you’ve started stims.

We were due for FET next week - also had to find out via social media all treatments cancelled.

I know it is hard to process but don’t torture yourself. Keep the faith and I am a firm believer that everything happens for a reason and our time will come again when our the timing is right. Don’t lose hope!!!!

We’re all here for each other Xx

Chegotsi profile image
Chegotsi in reply toBing84

Thank you so much for your encouragement hun! X

JoP32 profile image
JoP32

So sorry to hear this. I wish there was something I could say but there isn’t, it’s devastating.

You are however not alone - many people on here have sadly had their cycles cancelled and for those of us that haven’t, we understand the heartbreak of one being cancelled.

Sending you a virtual hug. 🤗xx

Chegotsi profile image
Chegotsi in reply toJoP32

Returning that virtual hug! Thank you so much. X

Rena1222 profile image
Rena1222

Oh no that's horrible news all that sacrifice and then they pause it due to corona virus. The anticipation that you had for your final round was crushed but maybe summer will be it for you and you will have your baby just not now.

I actually just recently gone through IVF earlier this month at a clinic in Mexico (TJ) and commuted back and forth from Los Angeles which was draining on top of everything else with IVF. Unfortunately, during my 2ww, I bled a lot and my 2 embryos didn't stick 😫 I felt this was my first and only chance bcz I'm 40. After my last appt with my fertility doctor last week, we noticed the overwhelming traffic (more than the norm) at the border. Turns out they were preparing to shutdown the borders. I couldn't even imagine what I would do if my IVF worked and any emergencies or follow-ups came after this pandemic. I'm so devastated that I'm not pregnant and this whole virus thing is so scary and depressing everything is turning upside down for me and is causing conflicts between my husbans and I as well bcz he doesn't understand.

Anyway, let's pray things will improve very soon with the c-19 virus and things get back to normal and that we can hopefully have our baby in the near future. We have to stay positive 🙏🏻❤

Chegotsi profile image
Chegotsi in reply toRena1222

Thank you so much hun for replying my msg. I am really sorry to hear about what you are going through. Try and sit hubby down and speak to him about it all from your perspective. I had to do that last night because it feels worse when we aren’t in agreement. Luckily he ended up listening and I felt much better. Let’s try and stay positive together - here is to hoping that our future will bring us healthy babies (sooner rather than later). Praying and thinking of you! Xx

Rena1222 profile image
Rena1222 in reply toChegotsi

Thanks sweetie!

Praying for our healthy babies in our future! Stay safe!! Praying for the world! 🌍❤🙏🏻

Patches86 profile image
Patches86

I’m so sorry. I understand your pain so can empathize with you. I was due to start my cycle next week (so hadn’t started stims like you - I can imagine that must have been tough) but was cancelled (private at NHS hospital). I spent a full day in tears, mostly because I’ve been waiting so long for this (as many of us have) and who knows how much longer we will have to wait. It feels like I only had the mental capacity to get to this point. I then got a small piece hope when I phoned another private clinic who said they were still taking new patients. Got all my documents and treatment plans transferred, all my hope back, only for them to also cancel a day later. Talk about a rollercoaster.

We are all on this ride together, it’s a difficult one.

Sending lots of love and strength ❤️

Chegotsi profile image
Chegotsi in reply toPatches86

Hi Hun,

Just thought to check on you and see how you are feeling today? I woke up feeling much calmer and better. I plan to have lots of icecream today as a treat hahah. And then get back on the healthy horse. This rollercoaster ride is intense but we are in this together! Praying and thinking of you! Please keep in touch - it helps to know there are others in the same boat as us! Xx

Patches86 profile image
Patches86 in reply toChegotsi

That is so kind of you thank you! The pain is still heavy on my heart but getting through each day, trying to focus on the other positives in my life and not scare myself with “what if” thinking. As much as other people try and be there for us, they can’t really understand without going through it. I’m here for you!

I’m glad you had icecream today - you deserve it! I got out for a run with my hubby and now enjoying a book before some pizza takeaways and wine ❤️

Rainbowhope profile image
Rainbowhope

I'm so sorry to read this. I can hear your anger and frustration and its justified. How dare your clinic not communicate with you. Its disgraceful. You deserve better. Please try and think of this as a delay and nothing else. Maybe you were meant to start later as it will be your time then. ❤🙏

Melrey profile image
Melrey

I was three weeks into drugs third cycle also and cancelled. It sucks I know but got our hands! Xx

Chegotsi profile image
Chegotsi in reply toMelrey

I am really sorry Hun. Sending hugs! C

Maisie234 profile image
Maisie234

Sometimes it feels these clinics forget how sensitive and life changing this all is. To not contact you is poor. I am desperately waiting until the summer or whenever this is over. All I can say is you are not alone and like the lady above said, everything happens for a reason.

I take myself off and have a good cry alone because hubby doesn't get it. Vent it out here too. Were all in this together. Take it a day at a time. Xxx

Chegotsi profile image
Chegotsi in reply toMaisie234

Thank you so much for responding. I think I just needed someone to acknowledge how hard this is. I wasn’t being insensitive to the corona situation but really overwhelmed here. I also got a job rejection from a five hour interview that caused me serious anxiety so yesterday was just a bad day all around. But hubby came back and hugged me. He just held me as I cried all day. I had a migraine after but at least I know he sees my pain. Just praying that when we eventually go for the last round we will be successful! Also with our clinic, I haven’t always found them to be sensitive, when I went to collect my timetable and prescription the reception really upset me. During the second round I had an aggressive nurse who did my first scan, I have endometriosis so serious inflammation and she was so aggressive that I left there bleeding. But I was determined not to let it get me down. I guess this was the final straw for me. It took me over the edge, but I know it’s not personal. Thank so much again for energising me. X

Maisie234 profile image
Maisie234 in reply toChegotsi

You poor thing. A five hour interview! I completely sympathise. No wonder you cried all day.

We put ourselves under so much pressure. I am not trivialising the current situation, but at 42, every month that goes by makes me anxious. I think use this time to alleviate the pressure and prepare for the summer. Yesterday must have been an absolute heartache. I know how it feels and my heart goes out to you. Today is another day and you will come out this at the other side. Take care xxx

Chegotsi profile image
Chegotsi in reply toMaisie234

I can just imagine, it’s hard isn’t it. I feel better today. Calmer and as you said the summer might produce better results so we just have to wait for the safe and right time. Thinking of you as well during this fight! Xx

Rainbowdreams82 profile image
Rainbowdreams82

I can completely relate as when I called to confirm dates for my scans etc this week I was told that it would be cancelled until further notice due to what’s happening with coronavirus. I am absolutely heartbroken too. Not only do I have to hear about how all my pregnant family and friends are during this time but I’ve to cope that yet again I’m further away from my happy ever after. I totally know where you’re coming from and if you need a chat I’m here. Somehow and someday we can do this. Take care xxx

Chegotsi profile image
Chegotsi in reply toRainbowdreams82

It’s really hard right, it’s got to the point where no one knows what to say to me. It’s all awkward and painful. We have a few people who are currently at the end of their pregnancies too and it’s really hard to watch. I keep thinking is it possible to be happy without kids - should I be preparing myself for that? I had chosen not to dwell too much on that and just gear myself up for the last round. So the Covid-19 situation really threw me. Ah this life! The worst part is no one understands how painful this is. My friend kept contacting me yesterday to ask me for advice about buying a house after I mentioned how devastated we were about the ivf cancellation. Her response was well it’s just postponed so you will get to it. I had to stop responding to msgs because I realised the ignorance is because she has never been through this before. I can’t expect her to understand. I just chose to focus on myself until I feel less overwhelmed. But you really right we will get through this. We will fight on as we have to! No other choice!

Rainbowdreams82 profile image
Rainbowdreams82 in reply toChegotsi

I know exactly what you mean about people don’t know what to say any more. I feel the same but when some people say nothing I find that hard too. It’s such a lonely and heartbreaking journey and I don’t think anyone can fully understand it unless they’ve been through it. It’s honestly like dealing with grief.

Here for you anytime and let’s chat again throughout this process. Off out for a walk and some fresh air to clear my head while we still can xx

Chegotsi profile image
Chegotsi in reply toRainbowdreams82

Definitely let’s chat - please keep in touch. I just woke up from a nap. Speak soon! Xx

Nuszkahope profile image
Nuszkahope

Hello,

Sorry to hear that your cycle was stopped but you are not alone, my treatment was also cancelled. I also need steroids with my treatment which is quite scary given that they suppress our immune system. The situation is very hard with what is happening in the world right now, you need to keep yourself safe and healthy.

I feel sorry for all the pregnant ladies, pregnancy is stressful as it is and I can not even imagine how stressful it must be in the middle of the pandemic. Try to stay positive and look forward to your cycle in a few months. The time will fly and soon we will be able to try again xxx

All the best,

Anna

Chegotsi profile image
Chegotsi in reply toNuszkahope

That’s true, I feel better this morning. Still sad but I can appreciate that the right time will come. Definitely agree that I probably would have been super stressed if I was pregnant. This is the hardest thing I have ever done. It’s a waiting game and the uncertainty. It’s torture. Have they said when you can get started again? Hoping that your route is pretty straightforward - we were told we only have 20% chance so it’s all a bit nuff to be honest. Hope you are Oky. X

Nuszkahope profile image
Nuszkahope in reply toChegotsi

I have been going through this process for 4 years now but I still remain hopeful x nobody knows when we will be able to do our transfer, it depends on the situation with the virus but I have decided that I will not do it until the situation with the pandemic is under control. Can not imagine stressing for 9 months every time I leave the house or touch something...

Newton2018 profile image
Newton2018

So sorry to hear this it must be very disappointing to have your treatment postponed when you’ve taken all your injections and built yourself up for it. Hopefully things will be re-scheduled from the summer and you’ll get your chance soon :)

I had a transfer done 8 weeks ago and it worked (it’s taken 4 years to get to this point so we’re over the moon and feel so very lucky) however I’m terrified of what this virus outbreak could do, and can’t take part in any kind of pregnancy classes and can’t see any friends or family, so I guess my point is that although your disappointed it may be better to wait until it’s safer to have your transfer and then you can really enjoy all that follows without the extra worry :)

Wishing you all the luck when your time comes x

Chegotsi profile image
Chegotsi in reply toNewton2018

Oh no, that’s awful. You deserve to celebrate this time especially because of your journey. Thinking of you. Praying and hoping that this is all sorted ASAP and you can enjoy the rest of your pregnancy. X

Net25 profile image
Net25

Please dont feel alone. As you can see from this forum there are so many of us who empathise with your situation. You are such a strinh person to be going through this process at this time, as we all are and I think we should be so proud of ourselves. Practice lots of self care at this time and this too shall pass xxxx

Chegotsi profile image
Chegotsi in reply toNet25

All the messages from everyone have really encouraged me. I definitely feel like there is a community of us that is affected by this and I am grateful I could vent. I feel better now - at least I have hubby to myself for the next few weeks due to this isolation. Thanks for encouraging me! Xx

Corchi profile image
Corchi

I’m so sorry hun. They cancelled me and then un cancelled me for an ET and I was in hysterics and felt like I have been in a car crash the last couple of days. I feel you and all the women that now have their cycles paused because of this virus. Hopefully it won’t last long. Remember this is a huge money making industry with a lot of powerful people behind it. I hope and pray that once the dust settles a bit some things will start to resume even if we have to still stay home. Thinking of you xxx

Mara84 profile image
Mara84

I’m so sorry dear, I feel awful too, specially because we don’t know when we can carry on... I’m sending you lots of love.

Bridj99 profile image
Bridj99

So sorry Samosa17. Its so devastating isn't it. Xx sending love at this horrible time

Bridj99 profile image
Bridj99

Can I ask for some advise. Because of the Coronavirus and treatments being postponed may mean I will be 40 when I have my treatment. My centre previously stressed it had to me done before, just wondered who I would contact to ask about this. This would now mean I would have to pay for fertility. I have emailed fertility society with no answer. If its the guidelines set for each CCG I assume I need to speak to someone other than my fertility provider. Very frustrating, especially because previous errors had lead to me starting a-lot later. Thanks

Chegotsi profile image
Chegotsi in reply toBridj99

Hiya,

So sorry that you are going through this. It’s so tough without You having a subconscious ticking clock. I am not sure where you would go but if I was you, I would challenge my clinic first. I would remind them of their obligation to give you the treatment and highlight the fact that it was outside your control (the postponement). Depending on their response I would then ask for an Appeal process they should have someone who they can refer you to if you aren’t happy with the way they have dealt with things up until now. My friend works for the health regulator I am assuming that you case would go that far if they keep pushing back. If you need to take a more firm tone then I would tell my clinics that it’s best that you all take it to the regulator so that they can judge the situation independently. This whole process is stressful without you having to fight for anything on top of that so I would take a more softer approach. The chances are they will accept you for this treatment despite the situation. I mean they should make an exception given the unprecedented situation in my opinion. Good luck, I am praying for you (both the situation and the future baby).

Sending you virtual love and hugs! Xx

Bridj99 profile image
Bridj99

Thanks for your reply Samosa17. Xx very good ideas! ❤️❤️ Keep me posted on how you get on xx

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