FET cancelled 😭

[Cmc2020]

Hey everyone I am new to here but been reading lots of comments etc about FET

After having an ectopic and three miscarriages I couldn’t wait to start my Ivf

It’s been such a long journey I had to do a freeze all because I was High risk of OHSS ! The timing wasn’t great I couldn’t start straight away because my hospital shut for Xmas so waited so long anyway I have 7 frozen 5 day embryos I thought I was having my transfer this week or last week and couldn’t because my lining only reached to 6.6mm I am devastated I have to wait for a withdrawal bleed then my period which will probs be so late this is just my luck I will be started a different protocol they didn’t up my meds or anything I just continued on them for 5 days and I feel if they upped my meds maybe it would have got to the right stage for transfer I know some of yous have went through this did yous wait long for ur second bleed ??

[alittlelife]

Hi Cheryl, so sorry to hear this. It sounds like you have had such a tough journey.

I understand entirely the frustration about the cancellation. I’m in exactly the same boat waiting for my period after it was cancelled last minute as my lining went from 9 back down to 5. They haven’t increased my meds but have changed the oestrogen pills to patches. I was so shocked and upset at the time but feeling a little better now as I had worried they might make me wait a full cycle. It’s not arrived yet but I only stopped the drugs on Friday. Fortunately I’ve been given the green light to start again on next bleed.

Could it be that they felt the thin lining might contribute towards miscarriage risk and therefore prefer to give you a better chance from the start and ensure you have a better lining first? I know it’s so far from ideal but hopefully they are doing all they can to maximise your chances. Can I ask what changes to protocol they made?

Fingers crossed your period comes soon. I’ve started having cramps today so it may just be that only need to wait a day or two.

Lots of hugs - and sending you all the best wishes for the next few days xx

[Cmc2020 in reply to alittlelife]

Thanks so much for your reply and sorry to here the same has happened to you it’s so bad having to go through this I have responded so well the full way through so didn’t think for min I would have a problem at this point

Anyway it is what it is I would rather it was right and wait it’s just so frustrating how many embryos do you have ? I really hope your period comes soon I’ve to stop the meds on Friday too. The protocol I will be on next will be injections instead of pragynova but she said it’s a faster protocol I think it’s injections for 5 days then straight to FET I wouldn’t be so bothered if I could just go ahead with this bleed I have to wait for this one then start with my other one after my egg retrieval it was sooooo late 🤞it’s not the same tho

Sending you lots of hugs and best wishes to you too keep me updated it’s good to know I am not the only one are you from the uk I am so it’s through nhs I probs wouldn’t have to wait if it was a private clinic 💕

[Cmc2020 in reply to Cmc2020]

P.s they didn’t make any changes to the protocol I was on I was on the nasal spray and 3xpragynova daily I asked them to up my meds if possible with the 5 extra days they had given me to see if it would go thicker and they said that’s the max they advise and it did go thicker but obv not thick enough xxx

[alittlelife in reply to Cmc2020]

Awe thank you for all your support it sounds like we both had our bad news around the same time. Yes - they also didn’t increase the drugs for me. I think it was because mine has gone backwards so they thought maybe it was just too late to reverse it (it was day 16 I think). it must be even worse as you had to skip a month because of the OHSS. I thought that would happen to me to but I was lucky in that I got to have a fresh transfer early December. Sadly it didn’t work but I have 6 frosties on ice which I feel fortunate to have despite the added delays.

I’m in the UK but don’t get any free IVF where I live so we had to go straight to private. I think all the drugs protocols vary so much between clinics etc. My lining was 9mm for the fresh transfer so they seemed positive that I wouldn’t need loads of other drugs but I have to go in next time for much earlier scan so can increase then if necessary.

I really hope your period arrives soon. My Christmas one ended up being 4 days longer than normal and I remember being terrified it might not come back for months! But this time I’m a bit calmer and just hoping it’s only a few days again. I’m going to have a few days with my parents as husband is working late this week.

Hang in there - my friend who had ivf (and now has a baby) said from the start that the entire thing is a process to be taken one day at a time and that all set backs are just part of your specific journey that can end in success. So basically don’t take the set backs as set backs but try to see them as a sign you are still moving forward and reaching different markers on that journey even if it feels the opposite!!

Fingers crossed for you xx

[Cmc2020 in reply to alittlelife]

Thanks to you too 😊that’s very true today I was really upset then I was thinking it could be worse I could have no eggs or embryos etc so a couple more month isn’t going to hurt

We have told everyone about it so I feel a little stressed everyone asking aw how did you get on etc so I think I am just going to explain what’s happened then say we are just keeping it between us. And that must be worse having your lining perfect for it to go down again so gutting I have read so many FET success stories I was upset I couldn’t have a fresh transfer at the time and then I realised it was for the best I was too sure it’s great you have 6 Frosties too ❤️it’s reassuring that’s rubbish you can’t have free cycles I got them because I have that ectopic pregnancy so it’s helped or I would never have been able to afford Ivf for years Intill I saved so I am fortunate really and I will wait as long as it takes

I have 7 Frosties and if all them fail I get 2 more full cycles so I can’t complain where abouts in the uk r you ? I am from Scotland

And thanks so much your messages has honestly made my day I also know people that’s went through it and it was successful for them and also a rollercoaster so fingers crossed for us

Your friend is spot on as well all the step backs are for a positive thing in the end 💕

Positive vibes 🥰 will this be your first child ? Xx

[alittlelife in reply to Cmc2020]

So just checking can you start the injections on the withdrawal bleed or do you have to wait a full month? X

[Cmc2020 in reply to alittlelife]

No I have to wait Intill my actual period so after the withdrawal one are you starting on the withdrawal bleed or have u had that ? Xx

[alittlelife in reply to Cmc2020]

Firstly it’s so wonderful you have 7. I would be so hopeful that from 7 one will bring you your dream even though it feels like everything is so uncertain in the moment. And of course it’s so much better to avoid OHSS even though the last thing you want to hear about is even more waiting!

I completely understand how difficult it must be when you have told everyone. Just remember yourself (and your partner if involved) are the most important people here and all your friends will only want updates because they want the best for you. I have found it easier just to be totally upfront around letting people know. It’s so hard but I tend to update people before they have the chance to ask me! I’m trying to really just trust the doctors and that any cancellation they insist on must be because they don’t want patients to go through any more unnecessary procedures and disappointments if things are not optimal. I have found that by trying to find ways to ‘bounce back’(if that’s even possible!) from set backs as early as is possible , that I then become a bit less anxious when waiting on news as I have learnt to have faith in myself returning to the hope zone as soon as possible. Not always possible though! I cried solidly for a day when it got cancelled.

Ah sorry, I misunderstood re the bleeds. That is tough that you have to wait a full month. But it will absolutely be the best for your body. I think that happens a lot although it does seem that maybe private clinics are more flexible. Although it is also likely to be because they want to give your body a break. I think I would also consider a month off as a better option if it wasn’t for the fact I’ll be away in March!

Can you use the month off to be extra kind to yourself and arrange some nice treats at weekends or anything really that might help take your mind off the waiting and help you to still enjoy things being medication free at least.

I don’t have any children so this would be my first if we are lucky with our Frosties. I’m fortunate to have 5 nieces and nephews so trying to be the best aunt I can be for now.

Also fantastic you get three rounds free on the NHS! I went to uni in Scotland and always remembered the healthcare there being really really good. Am glad you are in good hands and hope you feel a bit better in the coming days.

[Cmc2020 in reply to alittlelife]

That’s very true thanks so much for the support I am feeling a bit better today it’s sunk in now

So going to prepare my body for my embryo healthy eating and excise time flys in so it shouldn’t be long coming around 🥰

I know I am so lucky to have 3 free shots and did you what uni where u at ? I keep everything crossed for you too and hopefully you have a little miracle soon 😊

[CLDxxx]

Ah so sorry Cheryl. It’s so rubbish I know.

My FET was cancelled before Xmas because I had fluid on my cavity and also my lining only got to 5.8mm so they wanted me to have a hysteroscopy to check for any other underlying issues.

So I have a couple of things you can try - which I learned from the amazing ladies here.

Firstly, look in to castor oil packs and secondly raspberry LEAF tea (drink 2 cups a day) as both can help with lining and I believe they helped me (I did a trial run while I waited for my hysteroscopy).

When you get your withdrawal bleed, count that as the first day of your cycle and then you’ll know roughly when your period will be due - mine wasnt that affected so hopefully yours won’t be either. Once you have finished your proper period do both these things until transfer.

Let me know if I can help any more lovely.

You will get there and the way I eventually saw it was that my embryos new home needs to be at its best as it can be 💞 xxx

[Cmc2020 in reply to CLDxxx]

Hiya thanks so much for your message that’s reassuring when I had the first scan to check it was 6.3mm so I actually was drinking red raspberry leaf tea, eating Brazil nuts and having a hot water bottle twice daily but I only done this for 5 days Intill today’s scan and it had went to 6.6mm maybe if I done it longer it would have worked better but thanks least I know for next time and 🤞my period is the same then it was so late after my egg retrieval but it’s different meds so hopefully it’s the same as yours and it’s not affected I am so glad I have got this app now I feel so much better talking to yous already 💕have you went on to have a successful IVF cycle ? I really hope so 🥰xxx

[CLDxxx in reply to Cmc2020]

Ah I think I need to get involved with the Brazil nuts too!

This trial I did was natural whereas my FET was medicated and they increased my meds but it didn’t make any difference really but I’ve always had a thin lining.

I had my hysteroscopy last week and am hoping I can go ahead this month. I’ve been advised to do natural though which I’m hoping works better for me.

My periods were all over the place after egg collection but the cancelled transfer didn’t affect them so hopefully you won’t have too long a wait 😍

Ah this app is fab! I’m so pleased I found it too.

Xxx

[Cmc2020 in reply to CLDxxx]

Yeah you should try and pomegranate juice too if I wasn’t responding to the pragynova it is probs all that that’s worked to get it a little thicker just never done it long enough I will try next cycle though 😊

And really well hopefully this helps you having that done I have read the natural cycles your lining is perfect for a transfer so I keep everything crossed for you I haven’t had trouble with my lining Intill now it’s typical lol that’s why I didn’t give it a second thought this would happen but hey ho it’s done now will just prepare my self for the next time and I really hope that’s the case for me too then I was trying to find info on your period after a cancelled cycle and couldn’t find anything Intill you telling me about yours so thanks for that 🥰 xxx

[CLDxxx in reply to Cmc2020]

I definitely will get some today! Thanks lovely 🤞doing everything I can to get to transfer.

It’s so typical isn’t it! Ah yes so I checked and my period was about 3 1/2 weeks after my withdrawal bleed so just use this time to do some lovely things & relax ☺️xxx

[Cmc2020 in reply to CLDxxx]

Amazing thanks for that I really hope I am the same I am taking the time to chill maybe go away for a we weekend eat healthy and exercise I really hope it’s a good out come for both of us 🤞🤞🤞keep me updated 🥰🥰feeling a lot better today than I did yesterday hopefully when I stop my meds on Friday I have a bleed fairly quickly xxx