Morning lovely bunch.
So we had our appointment with the fetal heart specialist on Tuesday. And had a thorough 2hr scan of both babies hearts. Sadly as expected one of our Girls has a congenital heart defect. Which is called Complete Atrioventricular Septal Defect (AVSD). In short it means the two arteries didn't split when developing, plus there are 2x holes also. This means she will need heart surgery in either the 1st month of life or within 4-6 months. We were also hit with the news that this condition goes along side Down Syndrome, as it's a chromosomal abnormality. So after being hit with the heart condition, we also have the possibility of DS.
We go back in 4-6 weeks for a re scan with the heart specialist then we also see someone about the DS.
She is still my beautiful baby girl & I will love her & do everything in my power to protect her & give her the life she deserves but why is life so unfair some times. Everything we've gone through just to get to this point. I'm worried about how I'll cope with one very poorly baby & another new born that also needs her mummy. I don't want to neglect either.
I feel so sad, it has been one thing after another since day 1 & I'm starting to feel angry about everything we've been through, I'm also trying to be positive, but it's bloody hard! Maybe we weren't meant to have any more children & this is the universes way of telling me... I know it's silly thinking like this, but why do some people have things so easy & others struggle every step of the way.
Thank you for reading my essay! Xxx