How did removing your Endo effect you... - Fertility Network UK

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How did removing your Endo effect your AMH and fertility?

Minchoo
Minchoo

I have had two unsuccessful cycles with low AMH and stage IV endo, I am 35. I am in two minds about my next cycle and want to get endo treated before I go for it.

For us endometriosis sufferers

1) what stage endo are / where you?

2) Did surgery improve or worsen your AMH?

3) Did you do IVF cycles before surgery? If so were they successful?

4) Did you do IVF cycles after surgery? If so where they successful?

Thanks I just want to determine what to do here! Will be speaking to doctors this week about this.

Thanks! Any info would be appreciated 😘

20 Replies
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Hi Minchoo! I'm sorry to hear about your failed IVF cycles. In answer to your questions:

1) what stage endo are / where you?

I have stage IV and have had two laps. The first one was exploratory and they removed the endometriomas. The second was more invasive, and all endo was removed from around my bowel, ovaries, and I also had to have my left fallopian tube removed.

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2) Did surgery improve or worsen your AMH?

It did worsen in my case as I had a lot of endometriomas, which are blood filled cysts on the ovary. I naturally have a low AMH anyway which doesn't help....my AMH before surgery was 11.4 and after surgery was 7.8 - my consultant said this decrease is minimal and he does not see it making a huge difference.

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3) Did you do IVF cycles before surgery? If so were they successful? n/a

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4) Did you do IVF cycles after surgery? If so where they successful?

I started my IVF cycle 4 months after my surgery and unfortunately failed as all 5 eggs failed to fertilise. I have an upcoming cycle but the consultant will be doing ICSI instead.

Hope that all helps! Sending you the best of luck in your journey! x

Minchoo
Minchoo in reply to KDA0510

Thank you for replying! I hope it works for you fingers crossed!! 🤞

Melspels
Melspels in reply to Minchoo

Hi

I have a very similar story to Kiran but have had only one lap to remove two large cysts on both my ovaries. AMH went from 5.2 to 4.8.

I then did my 1st ivf cycle - I produced 5 eggs and all failed to fertilise. 2nd cycle we did icsi and despite only producing 3 eggs this time round (2 of which fertilised with icsi) I am pleased to say that I am 12 weeks pregnant!

Wishing you both all the best xx

Minchoo
Minchoo in reply to Melspels

Oh wow what wonderful news!!! Thank you for a positive story wishing you a beautiful pregnancy and a happy and healthy baby at the end of it 😘😘 xx

Melspels
Melspels in reply to Minchoo

Thank you Minchoo! Xx

KDA0510
KDA0510 in reply to Melspels

Hi Melspels! This is wonderful news :-) Hoping that icsi does the job! Just out of interest, did your protocol change? And did you use Menopur or Gonal-F? xx

Melspels
Melspels in reply to KDA0510

I think the key is having a good surgeon who is able to preserve as much ovarian tissue as possible xx

Hi I have had 2 laps and 2 ivf cycles. Before my laps my Amh was 13.9, which was 4 years ago. My recent Amh result from last week was 6. They said this was still within normal range for my age, which is 37. Left side of my left was fused. Unfortunately both attempts ended in mc x

Minchoo
Minchoo in reply to WeeJacs

☹️well I am glad your AMH wasn’t affected and it’s good it’s been treated. I do hope it works out for you. Are you going to try again?

WeeJacs
WeeJacs in reply to Minchoo

I defo still think it was effected if I'm honest. I am going to have the nk killer biopsy done, this can be raised in women with Endo. All our mc tests have came back normal so this is the last thing to try before we try again. Different clinic this time xx

Minchoo
Minchoo in reply to WeeJacs

Wishing you the best of luck. Well i am just curious. Mine is so low if I poke around in there i don’t even know if I will have anything by the end of it. I hope all the tests go well. Wishing you the best of luck in your new clinic. xx

WeeJacs
WeeJacs in reply to Minchoo

How low is it? Have you spoke to another clinic to get a different opinion? might be worth while, my consultant recommended removing as much as possible to ensure a less toxic environment. My 2nd lap was at the end of September, he has recommended we move quickly before it begins to grow back xx

Minchoo
Minchoo in reply to WeeJacs

It’s 1.2. Both my tubes are affected-and I have cysts on both ovaries. My right one is more affected then my left. I have been told it would be good to get my tubes removed. And if I can get my cysts treated. Other docs say to freeze eggs. But I have had two failed cycles and I am self funding.

I've had three surgeries to date - one diagnostic and two excision surgeries, both with removal of bilateral endometriomas.

After my first excision surgery my AMH was 11.5 and was reduced to 10.1 after my second.

I had my first cycle of IVF in Feb/March which unfortunately failed. I still feel like there are some positives in that I had 7 eggs harvested, 4 fertilized and by day 5 we had 2 blastocyst embryos.

Unfortunately, during EC they found small endometriomas in each ovary and my symptoms have started to creep back in. Hoping to avoid another surgery but will take the advice of my consultant.

Best of luck to you.

Minchoo
Minchoo in reply to discobec

Disco - are you doing anything to prevent them? Like anti inflammatory supplements? Or serrapeptase? I highly recommend it. I am going to start castor oil wraps too. Will let you all know how I fair!

discobec
discobec in reply to Minchoo

Yes I take a whole raft of supplements - surprised I don't rattle! I take turmeric, omega 3, magnesium, vitamin D, Ubiqinol and royal jelly. I have taken serrapeptase in the past but might give it another try.

I also have regular acupuncture and do castor oil packs from time to time. If they told me to chop my arm off to cure my endo and have a baby I'd probably give it a try!

Minchoo
Minchoo in reply to discobec

Haha bless you what a crap disease this is. I hope they find a cure soon. I was reading and endometriosis tissue is very different to the tissue in our womb. It’s so debilitating. I really cannot understand why they are not doing more. I pray it stops and that you have a beautiful baby!! Lots of baby dust your way xx

discobec
discobec in reply to Minchoo

Thank you and the same to you. Once I've eaten every Easter egg in the house, I'm going to start the Keto diet. It excludes sugar and carbs and is used as an anti-inflammatory diet. Apparently there are IVF clinics in America who automatically put their patients on it prior to IVF. X

Minchoo
Minchoo in reply to discobec

Hahahahaha get munching!!! Ouch no sugar or carbs 😦 I guess no pain, no gain!! I am going to reduce dairy and wheat. Have stopped coffee and all forms of caffeine. What a fun life!!! I do envy people who fall pregnant at the drop of a hat. They don’t know how lucky they are. 😂😬 wishing you lots of luck lovely 💕🍀 xx

Hi ladies I don’t have endo but had a laparoscopy to remove an ovarian cyst 3 years ago. Before that I conceived my daughter naturally but never been pregnant since. My amh is only 3.1 now and during ivf egg collection the doctor said that ovary looked like it had been operated on & that it would be normal for it to have affected my fertility as an effect of the surgery. NOBODY told me this post op they just said it was a successful removal and ovaries were intact. I feel so sad that I wasn’t informed & I left it nearly 2 years after that to start ttc . So basically yes I think any kind of surgery down there can impact amh / fertility. Let us know what you decide , I guess good they are giving you a choice . How about do ivf , freeze then get surgery before transfer ? Xx

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