My journey with Nash

[Alterity]

This will be long. As most of you know I was diagnosed with NASH 20 years ago at the age of 45 and weight of 283 pounds. In Dec. 2018 I was diagnosed to be in Stage 4 Fibrosis and my Dr. retired and sent me to a Dr. who is determined to find a cure and she put me into the research program right away. During the previous 18 years I had lost about 35 pounds and yo yo a lot. At one time I was down to 220 only to go back up again. In the last 18 months while on the research pill I have lost a lot of weight and last week I was 192. Almost 100 pounds in 20 years. In Sept they said my fiberscan went from 17.8 to 11.4 I really felt I had the right pill and I feel so much better. On Monday last week they did a biopsy and they said I was still in stage 4. I was so upset and depressed. (I'm usually very positive) I could not believe losing all this weight and taking this pill that I'd still be in stage 4. Well they finished the 6 test I needed to have on Friday and today I receive and e-mail from the dr. telling me about the Fiberscans being 9.6 and the ultra sound showed the surface appears to be getting smooth. My liver is not near as hard or swollen as it was and even though the biopsy said I was still in stage 4, on the inside, I am healing from the outside going in. The study has determined I am now in stage 3. She told me to stay positive and to keep up the good work, that as of right now, there is no new liver in my future. Back in 2018 they talked to me about the living liver. So this message is to tell you to stay positive, continue to lose weight and you can slowly get cured. I'm now 65 and doing better than I was at 45 for sure. Very few crashing spells anymore. I have learned to listen to my body. Please listen to yours to stay alive and to beat this Nash liver disease.

Pam

[nash2 Partner]

Hi Pam

Great message and I'm glad you came to grips with it. I've gone from 21.5 and F4 to 9.6 and F3 since 2015. The important measure is how you feel. Stay the course and there is no reason that you need ever reach end stage liver disease.

Wayne

[Alterity in reply to nash2]

Thanks Wayne. They actually think I probably started closer to 25 in a Fiberscan, however 20 years ago they did not do Fiberscans. I had my first one about 3 or 4 years ago and was over 20 but in the last 18 months have gone 17, 11, now 9. I need to lose about 30-40 more, but as we all know, that is very hard. Just lucky I went in for Gastric By pass in 2001 where they aborted the surgery and said it was the worst liver they had ever seen. If it wasn't for knowing I had this disease, I'd probably been dead by now and said I was a closet alcoholic. Wrong, I have now learned that this liver disease can now shut down every organ in your body and so many heavy set people die of heart attaches actually died of NASH. It's just hard for people to believe that food is killing them. At least the bad food, including me.

[sosteady]

You are an inspiration, thank you for being so open and honest about what you have gone through with this disease. Anytime I get discouraged I open this app and read one of your posts and I can recommit to my forever plan, no white stuff, no saturated fats, no alcohol and plenty of olive oil and coffee/green tea!

You have again penned a post that will be a go-to post for anyone veering off the highway to healthy! Many of us listen to you telling us to listen to our bodies and rest. Thank you and my continued wishes for your successful journey. all the best, sosteady

[Jkf1]

I love hearing from you and I am happy that you were able to improve! You are definitely on the right track to have a long full life. Did the blood tests show that you were normal? They determined that you went from stage 4 to stage 3 and I was wondering if they did any blood work, Because sometimes blood work has a habit of being normal when you're really not. And may I ask what you mean by you don't crash as much anymore?

[Alterity in reply to Jkf1]

My blood work has always been normal or once in a while slightly elevated. That is the problem with this disease and why it doesn't get detected is so many dr. go by the blood work, and it does not show the problem. By crashing I mean you feel like your whole body is shutting down, your so exhausted you can't put one foot in front of the other. I use to get flu like systems a lot. It was just the liver would not digest things and when it was hard for it to digest then it exhausted me. Now it seems to be functioning so much better, the exhaustion and the flu like symptoms are few and far between. I found stress doesn't help.

[Jkf1]

Thank you for sharing.