Log in
Living with Fatty Liver and NASH
3,003 members510 posts

NASH

Hey y’all, I was recently in the emergency room because I’d been having awful RUQ pain for over a month. I went in pretty sure I was going to have to have my gallbladder removed, but then was told that my gallbladder was perfect, but I did have a moderate fatty liver. The ER Doctor told me that he thought since I was having pain, I might have NASH. At the time, I had low albumin and creantine. All liver enzymes normal. He told me he didn’t know much about it and that his best advice was to lose weight and change my diet. I followed up with my primary care Doctor who then sent me to my gastroenterologist. She immediately rechecked my labs that had all went back to normal, it was about three weeks from my ER visit. She said she didn’t believe that I had NASH due to the fact that there was no liver inflammation noted and all of my liver enzymes were normal. This was all in late September/mid October. I cut out pretty much all sugar from my diet and started exercising daily. I’ve lost 25 pounds since then. Now, I’m thinking after eating some bad food over the holidays, the pain is back and my creantine is low again. I know that y’all can’t give me any advice, I’m just curious if anyone else has been diagnosed with NASH with normal liver enzymes, no high blood pressure, and no diabetes. I can’t find a lot of information online and am feeling a bit hopeless at this point.

Thanks in advance for your help and time. :)

14 Replies
oldestnewest

I think the best thing you can do is keep a food and fluid intake journal and if necessary recreate some of your diet with the not so great things you tried over the holidays to see how you feel once you have tried each food. It is great your test results are not showing anything. Food and fluid intake is so important with many conditions and very important as far as the liver is concerned. Hope you get the bottom of what's triggering your feelings then you can avoid such foods/drinks in the future.

Removing refined carbohydrates from your diet is a great way of helping your body and increasing the amount of plant based foods will certainly help.

1 like
Reply

Hi Ajo

Lots of people have NASH and even cirrhosis without abnormal blood tests. The blood responds to how fast damage is being done so if it is slow, as is common with liver disease, blood results are OK until the disease is fairly advanced. Losing the weight is the right path to take. Diet is your only real tool at this stage as medicine has few treatments. Here is a link to information about diet if that is of interest to you.

fattyliverfoundation.org/di...

Wayne

1 like
Reply

Thanks Wayne, I had a feeling that was the case. The doctors all keep dismissing the original NASH theory the ER doctor had which is very concerning to me seeings how all signs point to that. I went back through my medical charts from the last five years and have never had low albumin, creantine, protein, or any of the other wacky things going on. Think I’m going to look into getting a second opinion and hopefully someone who will take things a little more serious. I think since I don’t have diabetes or high cholesterol and I’m only 28, they think it just isn’t the case. Going to look at your link for diet now, should be really helpful. I was finding a lot of back and forth info on what I should and should not eat. Thanks again!

Reply

Thanks Ajo

At your age it is difficult to be taken seriously when you discuss liver disease. It is uncommon but not nearly as rare as it used to be. With young people it is frequently related to auto immune issues, toxins, or other environmental concerns but it is common for people to have a 5+ year journey from doctor to doctor before finally being diagnosed. The problem is magnified because the standard of care is not to test for liver disease absent symptoms so unlike things like cancer or high blood pressure the policy is not to look for it. If you can find someplace that will do a FibroScan for you that is the simplest way to see what is going on. If you live near Houston we will do it for you for free but the service can be a challenge to find. Here is a link if that might help.

fattyliverfoundation.org/ed...

Wayne

Reply

I'm no expert either. I have NASH confirmed by ultrasound and the special fibrosure blood test. My last ultrasound shows increase in fatty liver and now enlarged liver. Sometimes liver enzymes are mildy elevated and sometimes they are normal, can't go by that. I have no diabetes, I'm not obese, normal triglycerides . Sometimes you can figure it out. I would see a heptologist who subspecialty is Liver diseases. He will give you good advice.good luck

1 like
Reply

See, that’s exactly what my doctor used to rule it out. She literally said your liver enzymes are normal, you don’t have diabetes or high blood pressure, and your cholesterol is normal. I had a feeling I should be more persistent in figuring this all out. How long ago were you diagnosed and how have you been managing? Hope you’re feeling as good as you can!

Reply

Thanks for sharing you guys. It kind of worries me how fast the gastroenterologist dismissed the NASH theory of the ER doctor. My primary care doctor literally thinks anything and everything is anxiety related so she’s basically useless. The gastro doc ordered a HIDA scan that I’m having next week to make sure the pain isn’t actually from my gallbladder. Think that scan shows liver function too so maybe that will give me a little more insight. Will keep you guys updated! Reading everyone’s stories on here has given me a little hope. When the doctor first mentioned NASH and I went home and googled what that was, I found very little information and felt like it was a death sentence. This is a great community. ❤️

1 like
Reply

Just diagnosed in 2018. So far just diet but not doing well sticking to it. I am going to see a heptologist, and get a fibroscan , special ultrasound that looks at elasticity of liver. Scary diagnosis knowing what outcome can be. Good luck to you as well. Never take the word of one person, keep researching and ask for tests your self.

1 like
Reply

What is a fibroscan?

Reply

Sticking to the diet is so hard. In September when I was diagnosed, I immediately threw out everything bad and started eating extremely healthy. I remember crying in the kitchen one night because my roommates were having pizza and I was stuck with chicken breast. The diet changed did eliminate a lot of the pain for me though. I’m kicking myself right now because I ate so badly over the holidays that the pain is back with a vengeance. Will probably take me a couple of weeks to get things to settle down. Let me know if you want any recipes though, I’m been on the lookout. ❤️

Reply

I forgot to ask you guys if anyone has experienced stool changes?

Reply

Have you been tested for hemochromatosis? I found out i had it. This contributes to fatty liver and in my case actually caused the fatty liver. I monitor what i eat and try to stay away from iron rich foods. When my liver function test elevate and creatine goes off level i have flubotomy where they remove blood (one bag) and my levels come back within normal range. I had my siblings get tested and all but one has hemochromatosis. Now finding some of my cousins have the same symptoms and issues. It is genetic testing so insurance may not cover it all.

1 like
Reply

I’m not sure if I have or not, as soon as they found the fatty liver, my gastroenterologist ordered A TON of blood tests to rule out pretty much everything under the sun. Do you know exactly what the test is called, I could go through my chart and check. What were your symptoms?

Reply

All the s as me symptoms as fatty liver. Elevated liver function tests. Ask doctor if you were tested and read up on hemocromatosis.

Reply

You may also like...