Hi all, I’ve been lurking a while and have found this community and the FLF site to be a valuable source of information. As my journey continues I wanted to share my experience and diagnosis (or lack of) and perhaps hope that the collective expertise of the community can help we with questions to ask and to direct my treatment pathway. All advice and input is very gratefully received. I’ll try and keep it brief.
I’m a 50 year old, white male from the UK. I’m a big lad, 6’5” and 290 lbs. A couple of side notes. I have CSID (congenital sucrose imolamaltase deficiency) which means I can’t digest sucrose and some starches. It’s doesn’t cause daily issues but I wonder if it may play a part in this situation. I have also had high BP since my late teens. I have taken a variety of medications for this over the years. 5 years ago I suffered a heart attack and had 2 stents fitted. I thought I was fit, gym, running and lifting. I guess not! I have been a moderate to heavy social drinker since 30’s.
Approximately 3 years ago I noticed an occasional right sided discomfort and pressure, particularly when I leant forward. 12 months ago I experienced a 24 hour period of more severe pain on the right side of abdomen that felt like a tearing sensation. I went to the GP and had a bunch of tests. My annual blood tests had always shown normal liver function result, as did these latest tests. She also checked ferritin which came back slightly raised at 450. I also had an abdominal ultrasound which was normal.
Skip forward, I had a specific liver, kidney and spleen ultrasound which was totally normal size, liver not particularly fatty was the immediate feedback. Referred, for Fibroscan. The technician had a really hard job doing the scan, finally he got readings and completed the process. He wouldn’t disclosure the results and said I’d get a letter. I saw the screen though and googled when I got home. 75kpa. The fear set in. I haven’t drunk a drop of alcohol since the scan. Consultant said results were contradictory and that the only way forward was a biopsy. This was done on Thursday. Consultant had a really hard job imaging the liver. The process took 45 mins and he said that his experience reinforced the fibroscan result, he said he was confused too. I present as completely well!
And there you have it, I have little or no symptoms of liver disease other than some random, occasional, and not severe abdominal discomfort, normal bloods (e.g. platelets 225 to 275), my scores on all methods are very low risk for fibrosis/cirrhosis, yet it appears my liver is severely damaged.
Now anxiously waiting the call with results of biopsy, wondering what the future holds and how on Earth this all happened.
Sorry it was so long, and thanks for listening.