Posts - The Erythromelalgia Association | HealthUnlocked

The Erythromelalgia Association

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Questions?

Hi. I have recently had issues and posted it on this app and people have said it sounds like this condition. I get severe burning sensation in my face, ears,...

Hi. I have recently had issues and posted it on this app and people have said it...

•4 years ago

Desperate for some help & advise please xx 🥺❤️

Hi, this is my 1st post in this community, I'm at my wits end and wondered if anyone has any advice. I have red feet and hands which itch like crazy..... I...

Hi, this is my 1st post in this community, I'm at my wits end and wondered if an...

•5 years ago

I think i have erythromelalgia

Hi, My names Matt 29 years old, I was diagnosed with raynauds about two years ago. I get cold hands feet, tingles and Pins and needles. However I’ve noticed...

Hi, My names Matt 29 years old, I was diagnosed with raynauds about two years ag...

•5 years ago

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Simvastatin-induced erythromelalgia: less is more.

Acta Clin Belg. 2019 Jul 10:1-2. doi: 10.1080/17843286.2019.1640929. [Epub ahead of print] Simvastatin-induced erythromelalgia: less is more....

Acta Clin Belg. 2019 Jul 10:1-2. doi: 10.1080/17843286.2019.1640929. [Epub ahead...

•5 years ago

What to do now?

Hi all. I've had this red burning in my feet and hands for many years now. I just took it as normal for me. I first got it around 15/16, I was a dancer and...

Hi all. I've had this red burning in my feet and hands for many years now. I ju...

•6 years ago

Hard skin across crease of hands palm Side

Had this 3 months now, the other hand looks normal now but had it alot less than the right hand.

Had this 3 months now, the other hand looks normal now but had it alot less than...

Missnatalie2018

•6 years ago

What a battle that can't be won

Hi everyone. I was diagnosed 4 years ago to having this fantastic disease erythromelalgia given gabapentin and Zapane and basically left to deal with it due to...

Hi everyone. I was diagnosed 4 years ago to having this fantastic disease erythr...

•6 years ago

Burning hands and feet?

Hi I have what my drs are calling over lapping connective tissue disease and recently been getting burning and tingling in my hands and feet wondering if it...

Hi I have what my drs are calling over lapping connective tissue disease and rec...

•6 years ago

Neurologist

So since my last post I was referred to NHNN and they ordered mri of brain and spine and some electrocution type tests. Today the neurologists says the results...

So since my last post I was referred to NHNN and they ordered mri of brain and s...

•7 years ago

Erythromelalgia & Gabapentin

Potential Erythromelalgia diagnosis given by private consultant. Put on Aspirin for 5 days in August which did not help. Saw my rheumatologist yesterday and...

Potential Erythromelalgia diagnosis given by private consultant. Put on Aspirin ...

•7 years ago

Diagnosed with EM and Hyper-mobility

I haven't posted on any forums for a while as iv been ignoring the problem and getting on with life and to be fair i dont notice it a lot until i stop and sit...

I haven't posted on any forums for a while as iv been ignoring the problem and g...

•7 years ago

Erythromelalgia - what next?

After four years of getting nowhere with my Rheumatologist, I took the bull by the horns and did some research of my own about my burning red palms. I found...

After four years of getting nowhere with my Rheumatologist, I took the bull by t...

•7 years ago

General pain during & between EM flares

Hi all I'm new to this community, having been diagnosed on 26/05/17 by Dr Ong, from Royal Free. I need to ask if anyone has lots of pain in legs & arms, not...

Hi all I'm new to this community, having been diagnosed on 26/05/17 by Dr Ong, f...

•8 years ago

The world's most extraordinary people

Episode 6 of the BBC's Discovery Series on "The world's most extraordinary people, Dr. Weston's casebook" includes a segment about an EM sufferer. This will be...

Episode 6 of the BBC's Discovery Series on "The world's most extraordinary peopl...

•8 years ago

Erythromelalgia & Hypermobility

Apparently my Erythromelalgia is caused by this, i can`t find a link anywhere on the internet... wondering if anybody suffers the same?

Apparently my Erythromelalgia is caused by this, i can`t find a link anywhere on...

•8 years ago

Infusion for Raynaud's and Erythromelalgia?

Saw a vascular specialist for the first time yesterday. She confirmed that I have both of these conditions and calls is vessel wall instability since I have a...

Saw a vascular specialist for the first time yesterday. She confirmed that I hav...

•8 years ago

Be careful with amlodipine

I wanted to pass on something that happened to me recently. Since September my erythromelalgia has been terrible - flares every day, carrying ice packs...

I wanted to pass on something that happened to me recently. Since September my e...

•8 years ago

What type of doctor?

Well, it seems there are very few on here that are suffering from this disease, but I'm throwing out a question just in case. I was happily sent a list of...

Well, it seems there are very few on here that are suffering from this disease, ...

•8 years ago

Newly diagnosed

I've been dealing with autoimmune issues for several years, but was just recently diagnosed with autonomic neuropathy, myopathy with secondary neuromuscular...

I've been dealing with autoimmune issues for several years, but was just recentl...

•8 years ago

Winter

And so the vicious cycle has started

And so the vicious cycle has started

•9 years ago

Updating again

Hi all, I thought I would update things again as there has been more change. After starting on high dose B12 and finding almost instant relief, I am sorry to...

Hi all, I thought I would update things again as there has been more change. Af...

•9 years ago

update on meds for erythromelalgia

I posted on here a few weeks ago about my diagnosis of erythromelalgia. Well things have changed a bit and I thought I would tell you what has happened. The...

I posted on here a few weeks ago about my diagnosis of erythromelalgia. Well th...

•9 years ago

medication for erythromelalgia

Hi all, I am new to this as I was only recently diagnosed with this condition. I was diagnosed by a vascular consultant in Dundee Scotland. He told me that I...

Hi all, I am new to this as I was only recently diagnosed with this condition. ...

•9 years ago

Any helpful hints to manage this

Hello, Can I ask some advice from you all please? I'm pretty sure I am currently suffering from symptoms of Erythromelalgia, I have MS and have had problems...

Hello, Can I ask some advice from you all please? I'm pretty sure I am currentl...

•9 years ago

Topically Applied Midodrine, 0.2%, an α1-Agonist, for the Treatment of Erythromelalgia

Research Letter | May 06, 2015 Topically Applied Midodrine, 0.2%, an α1-Agonist, for the Treatment of Erythromelalgia ONLINE FIRST Mark D. P. Davis, MD1;...

Research Letter | May 06, 2015 Topically Applied Midodrine, 0.2%, an α1-Agonist...

•10 years ago

Very interesting article on pain

Hopefully this will be accessible to everyone. An article about the fundamentals of pain and the dorsal horn of the brain, glycine, GABA,......

Hopefully this will be accessible to everyone. An article about the fundamental...

•10 years ago

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