I've been dealing with autoimmune issues for several years, but was just recently diagnosed with autonomic neuropathy, myopathy with secondary neuromuscular junction dysfunction and possible vasculitis (suffered a stroke at 41, four years ago, and they think that I may have had this at the time that attacked a blood vessel in the brain). Now for the last couple of months I've daily been having burning face, red, swollen. It also happens with my feet if I stand too long and after a shower. I must keep my legs elevated or I get terrible pain and a bluish, blotchy look.
I was told I had Raynaud's phenomenon last year (I also have terrible pain when my feet get cold - no matter how many socks I put on, they won't warm up) , but now this week my family doctor says these new symptoms seem to be Erythromelalgia. I read about it and it seems to fit perfectly! I hope to find some good advice here on dealing with this new diagnosis and what medications may help. Thank you in advance for any advice you can give me.