My names Matt 29 years old, I was diagnosed with raynauds about two years ago. I get cold hands feet, tingles and Pins and needles. However I’ve noticed that not only do I get cold I get extremely hot. When the heating comes on, when I exercise and when I’m asleep.
I also suffer from facing flushing which is so embarrassing especially as I have acne scars on my face and the flushing makes the scars look worse.
My sleep is terrible I wake up on average once an hour feeling hot or cold. Not only do my hands and feet and face feel hot but my whole torso as well.
I just spoke to my gp about referring me to rheumatologist but he said there’s no such thing as erthromelalgia Wtf??
Anyone else suffer from raynauds and EM? How do you manage them both? I’m thinking about asking for beta blockers but this will just exacerbate my raynauds. Help please.