I'm lost

[Curlyoddsocks]

I'm completely lost now . My 8 Yr old is fully incontinent when it comes to poop. He's fully refusing movicol and i don't blame him he's been on and off of it for nearly two years . He's fully compacted again and leaking . The gp isn't helping. The school nurse hadn't got back to me in nearly 2 years. The peadiatrics won't take him on without school nurse In put.

Last night he did the biggest poo in his pull up (yes he lives in pull ups because NOTHING that had been suggested is working) and it was nearly half a kilogram of the biggest empty he had had in months . He has one like it every couple of months and the rest is just leakage . I had to take a photo and weigh it so I can show the gp and plead someone listen because this isn't on at all .

Please. Please please. Someone help me

I dont know what to do now

Pic included of the 3 monthly empty . Teaspoon for reference .

[StellaA]

Poor Boy, that looks like it must have been agonising for him to pass.What else have you tried beyond laxido?

Have you tried any over the counter products like senna or bisacodyl, the later I've found very effective and reliable.

It also looks very dry, is he drinking enough, that makes a huge difference.

Don't worry that he's in pullups, if anything it shows maturity on his part for wearing them rather than having soiled underwear all the time.

What pullups are you using?, they look to have contained his BM well.

[Curlyoddsocks in reply to StellaA]

Honestly we have been on and off everything over the years ! The gp said he wasn't to he on any form of laxative for long because it wouldn't help the problem 🤦‍♀️ he was on a few bouts of senna and drops but its always the same. He does well for a week but then back to this the pull ups are amazons own bamboo ones which I have found to ve amazing ! Plus cheaper on the subscribe and save methods

[StellaA in reply to Curlyoddsocks]

Give bisacodyl a go, it's the active ingredient in most of the supermarkets constipation relief pills, and works best with another stimulant to help things along.Just make sure he's drinking absolutely loads or it won't do anything.

Do you have a like to the pullups, I'm still a bit baffled by Amazon, it's quite daunting having millions of identical products to pick from.

My granddaughter,11, is currently using the Aldi pullups, the adult ones, but mostly for bladder weakness, but sometimes still the odd poo accidents, there good value but you can't get them delivered and it's a lottery if they will have the right size in stock.

[Curlyoddsocks]

Yes of course ! They are just night time pants but I find they work the best! Bambo Nature amazon.co.uk/dp/B084KM7R8J/...

[StellaA in reply to Curlyoddsocks]

Thank you, do you know if they hold much wee?Or is your son's incontinence purely with his bowels.

[Curlyoddsocks in reply to StellaA]

Oh mine is purely bowels so I'm afraid I couldn't comment on wee . Sorry

[Alpha7821]

So sorry to hear this. Unbelievable that the paediatrician won’t take him on. Your son needs to be referred to a paediatric bladder and bowel specialist by the GP, ASAP. This isn’t something that can be fixed by over the counter meds or the sporadic GP advice. This sound like years of faecal compaction resulting in incontinance. Your nearest hospital that has that clinic will have to advise on a Disimpaction regimen which will include high doses of movicol (which can be mixed with squash after first being dissolved in water) or that sort of stool loosener and a laxative to help the bowels to contract.followed by maintenance. My 8 year old has done 3or 4 disimpaction Courses and remained on changing maintenance doses. The route we took was, GP after 6 months of back and forth with tummy pain. X-ray showed compaction and we were started on the disimpaction course which helped but had to be repeated many times. We are still on maintenance and a bladder medicine. Bristol Newcastle and London all that paediatric bladder and bowel clinics. Really hope your GP helps with this abs your son will recover soon. X

[Curlyoddsocks in reply to Alpha7821]

Yes I agree although we have done 3 decompations over this time as well but after years of movicol they just won't take it anymore because it makes them feel worse

[Maggieoverthetop]

Get in touch with school nurse and say you want a referral to the continence team , they can refer directly. Most continence teams are nurse lead. 🤞

[Curlyoddsocks in reply to Maggieoverthetop]

Been waiting for school nurse for 18 months now !

[Maggieoverthetop in reply to Curlyoddsocks]

Where I live the school nurses are based in health clinics with district nurses and health visitors . Maybe worth going and try to see if it’s easier to see her there. If you have already tried this then sorry. Hope you have a response from your GP I don’t think half of them realise how big a problem this is.

[MunchieMum]

Don't wait for your school nurse, contact your health visitor or children's centre and ask to be referred to their continence team. With poos that big, hard and infrequent it's likely he needs disimpacting and then a maintenance dose for 6 to 12 months to allow his colon to shrink back to a toned, normal size.

[OlivesYou]

Find out what he likes to drink. Buy plenty of it. and find out if he likes it ice cold or not as cold. Find out what type of tumbler or reusable cup he’d like, keep it on him and filled at all times. Provide snacks and plenty of activities to get him thirsty. Make challenges to get him to drink. Mix in small amounts of the laxative of choice until you get you to correct dose. Do not stop. Once you feel you have gottten it, you haven’t. you need to keep on laxative of choice until the bowel has shrunk. Takes quite a bit of time. I am on the second year and we have beat constipation together!! Do not stop. Keep him on until he is no longer able to withhold. Best you you!