Hello, can you please tell me how is it when you call the epilepsy association itself, and explain you have epilepsy and ask for help to find a residence or nursing home, you are told they do not help cos they do not deal with it, due to having epilepsy does not mean you cant live a normal life. And this was after explaining me having had to give up my job, own flat, car, etc, that I had, as my parents are late as well. And I also had the surgery just 3 years ago.
More so, I wasn't even asking for something free. I have been medically boarded, so I do have a monthly income as well as my own medical aid. I am also involved in volunteer work, such as care clowning at the Groote Schuur Hospital with the seriously ill children that are admitted in the hospital. So I am able to do voluntary work. However, recently there was a change in my medication and I am now having my seizures in the day as well, therefore I am searching for something soon. What's most silly is the epilepsy association does not help in this matter, since memory is the worse and with the actual seizure itself, we are not meant to be alone. I would really like to be more involved. But for now can I please be helped with a residence for myself. I am 42 years old, single, with no kids and have a monthly income and my own medical aid. Thank you, Saloshini Chetty
Hi Saloshini,
Please note Epilepsy Association cannot cater for everyone that has epilepsy. You are one of the lucky ones that has a salary and is on a medical aid... Most of those with epilepsy have neither. It is not the duty for them to find you a residence... They are there for advice and moral support for the one in 100 people in South Africa that have epilepsy. Many are not medically boarded and have to survive on a Disability Grant through the local Govt. if they are lucky... This does not happen for all.
Good luck.
Wow! Lesmal, here again your reply shows how awful and rude those in the epilepsy association are being. I wasn't asking you to cater for me. I was asking for help! Something I was not able to get. Something that I was searching for, for so long. More so, I may be one of the so called "lucky ones" that has a salary, however the prices of residences out there are ridiculous. My monthly income is nowhere near the prices I was seeing. That is why I was asking people involved in the association for help, hoping they would know of homes and in that price range. There are definitely many homes/residences out there. And Its not me being picky and choosy either. I did mention my parents are late. So its not as though I have other choices. The last person I spoke to in the association doesn't even have epilepsy. Perhaps try to include those of us that do have epilepsy and can understand and be more kinder to those with epilepsy.
I have had epilepsy for over 35 years and I do not work for the Association or connected to them in any way. My comments are from a personal opinion. Thank you.
Hello, so how can you reply for them in terms of them not helping every person that comes to them. That's what an organisation is about. Even with you mentioning my luck with cash and medical aid. My parents were not able to afford me going to a college when I finished school, but it didn't stop me from working hard enough to be in the position to be medically boarded when I was diagnosed with epilepsy. Motivation that is now being given to all spoken to. I am also involved in volunteer work. Not just saying I have epilepsy and sitting down. And I get my help in getting about. However, with living on my own being a no, I have been searching for a residence. I was/am able to afford to live on my own, but is not a choice. There are others that have the help of their parents. mine are late. So please be a little more understanding when you are going to give replies.