Hello, can you please tell me how is it when you call the epilepsy association itself, and explain you have epilepsy and ask for help to find a residence or nursing home, you are told they do not help cos they do not deal with it, due to having epilepsy does not mean you cant live a normal life. And this was after explaining me having had to give up my job, own flat, car, etc, that I had, as my parents are late as well. And I also had the surgery just 3 years ago.
More so, I wasn't even asking for something free. I have been medically boarded, so I do have a monthly income as well as my own medical aid. I am also involved in volunteer work, such as care clowning at the Groote Schuur Hospital with the seriously ill children that are admitted in the hospital. So I am able to do voluntary work. However, recently there was a change in my medication and I am now having my seizures in the day as well, therefore I am searching for something soon. What's most silly is the epilepsy association does not help in this matter, since memory is the worse and with the actual seizure itself, we are not meant to be alone. I would really like to be more involved. But for now can I please be helped with a residence for myself. I am 42 years old, single, with no kids and have a monthly income and my own medical aid. Thank you, Saloshini Chetty