Assistance with Section 21 appeal

[LilysMom]

Hi,

My baby has refractory epilepsy and recent genetic tests show that she is somewhere on the Dravet syndrome spectrum. She is on a cocktail of 4 meds currently, and we have approval from the MCC for her to use Stiripental (Diacomit), which is aimed at her condition but needs to be imported. Our medical aid though only will pay for 50% of the monthly cost, and we can’t afford the R2,000+ shortfall as I’ve had to stop working to look after her. Can Epilepsy SA assist us in lobbying Discovery? I know that there are NGOs assisting breast cancer patients with such issues, and hope that you are able to assist us in this case.

[Tumi_L]

Greetings. I also have epilepsy only difference is I haven't arrived at that stage. I'm still taking Epilim Epilizine CR600 twice a day... It may not solve the problem but it decreases the number of seizures I have per month. I wish I could help in terms of the financial situation... But I'll definitely spread the word.

[EpilepsySA Partner]

We would be honoured to assist you. Please let me know where you are based so that we can link you with the nearest Branch. You can email me directly at [e-mail] if you prefer.

[LilysMom in reply to EpilepsySA]

Thanks so much! We are in Cape Town (Bellville).

[EpilepsySA Partner in reply to LilysMom]

Please email me your contact details ([e-mail]) to enable me to refer your request to Epilepsy SA Western Cape.

[EpilepsySA Partner]

To the best of my knowledge you are already in contact with Epilepsy SA Western Cape? If not, please email me on [e-mail].