She was Diagnosed in 2011 when she was 10.
The Red Cross did an amazing job, Dr Riordan has always been understanding and considerate. Dr Nico Enslin and Prof Fieggen did two brain operations. The first one lasted 3 months before seizures came back, 2nd operation Dr Enslin pushed for as he told me her type of Epilepsy has a high risk of sudden death when patients are older, and the 2nd op lasted 2 years. Up until last week.
I just got her back, because they removed part of or most of her front temporal lobe it effected her mood, her memory, her speech and her confidence.
She started talking more, getting her confidence back, being more active....then the bomb fell. I could see the disappointment and hurt in her eyes when I had to tell her the seizures came back again.
Staying positive is so very difficult. As I know I have a long road ahead of me again. This time at Groote Schuur Hospital as she is too old for the Red Cross.
They are however doing a Sleep EEG at the Red Cross before referring us to GSH.
This is why I contacted Epilepsy SA, as I just cant. I have to work, I have to stay positive, I have to be there for my daughter as I am all she has. I however am broken.