Any one on or near the Isle of Wight have this?!

[SaffronBliss]

[crystal_willow]

if you go to your profile (here: endometriosis-uk.healthunlo...

and click "in my area" you should find the members close to you..... I am quite nearby

[SaffronBliss]

Thank you

I found that just after I sent this message lol

Theres loads of support groups and was wondering whether us down South should do something!

[cgroves]

Hi,

Yes I live on the Isle of Wight and was diagnosed with Endo in 1990. I had a laparoscopy to confirm this and removal of a small nodule. I have been taking the Oral Contraceptive continually since then and this has helped with the pain. I recently got married and have been trying to conceive for 6 months. My periods are all over the place, so have decided to go back to my Gynaecologist and have an appointment next week. I'm interested to see what, if any new treatments are available.

Good luck.

[Louby1404]

Hiya,

I'm on the Island too. I had a laparoscopy two and a half weeks ago and they found two pieces of endo and removed them. That is literally all the info I have!!! I am so frustrated I can't tell you. I'm getting all sorts of pains and I don't have an appointment with the gyni for another four weeks. And I really don't like him either. I'm in a right mood about it today!!! Can you tell? Support group sounds like a good idea. xxx

[SaffronBliss]

Hello girls!

This is why I went off to see a private specialist in Portsmouth! I have heard loads of rubbish from certain consultants on the island. They told me it was nothing to worry about, gave me an appt date for 4 months later, said the pain was all in my head..... Went to specialist who actually specialises in endo. He was the most amazing consultant, so caring, knows every question you have for him and always thinking about you as a patient! He said that my endo was stage 3 going on stage 4. so severe for a girl at my age and height! Just annoyed me that being on the island, they kept saying it was in my head and it was a urine infection etc but never actually done tests until I demanded it! I got admitted in so much pain a few months ago and they said sorry we cannot do much, put me on a drip of pain killers and said they cannot do much else. Was so frustrated! ... Endo makes everyone mad dont you panic! People just think we make this pain up! ... Thinking around the awareness week 4th-10th March? Do not know where to start or meet lol ... but would love to chat to people about it! Ive also found out I only ovulate every 4-5 months and sometimes longer than that, so when I do want children, I am worrying that its going to be hard! ... Let me know and if you know anyone else, maybe we could all meet up one day? xxxx

[Mia137]

Hi !

I now know that I have endometriosis like you. And I also experience doctors that ignore my explanation about endometriosis in Sweden. Because I am swedish. But when I came here and went to Ventnor health center a wonderful doctor shall help me. Support group would be lovely to have.