Re hysterectomy, just bear in mind that a hysterectomy is only useful if you have adenomyosis (endo like growths in the uterine muscle / wall) and of course for other gynaecological conditions such as heavy bleeding and fibroids etc. It will have no benefit for peritoneal endo (i.e. endo elsewhere within the peritoneal cavity). This is generally they type of endo that sticks internal organs together such as bowel / bladder / ovaries etc.
The experts believe that Endo (peritoneal cavity) and Adenomysis do not have the same origin and do not necessarily migrate one into the other and so are separate conditions; albeit ladies who have peritoneal endo, do sometimes have adenomyosis also.
Apparently, medical training for doctors relating to endo is still based on research undertaken 50 years ago and much of that original thinking is now considered flawed/out of date by today's endo experts - but still remains the basis of general medical training. Hence you still get gynaes saying hysterectomy cures endo, regardless of where you have it!
The top endo consultants say the best option for peritoneal endo is excision surgery to remove the endo.
Where a hysterectomy is performed for adenomyosis or other gynaecological reason, and endo is also present in the peritoneal cavity, then excision surgery should be performed at the same time to deal with this, otherwise, your adeno will have been dealt with but not the other endo.
My first gynae consultant told me after an investigatory lap that I was a 'total mess' and my only hope was a hysterectomy and oophrectomy. After researching on the internet, it became apparent this was not my only option and, in fact, as my endo was extensive throughout the peritoneal cavity, I would have had a hysterectomy that I may not have needed if adeno was not present and still be riddled with endo. I would have lost my perfectly well working ovaries (albeit stuck up and chocolate cysts - but this was not irreparable by a skilled surgeon) and would have been on synthetic HRT.
I ended up with a different surgeon and had excision surgery to remove the endo.
I learnt that the specialism of my first consultant was in fact performing hysterectomies! This in itself would have been fine if there was a strong suspicion of adeno or if she had also recommended excision alongside for the extensive peritoneal endo that I had (frozen pelvis affecting bowel, bladder, ovaries, utero-sacral ligaments, diaphragm, obliteration of pouch of douglas (rectal/vaginal)). Although she had advertised as treating endo, she did later admit when I questioned her about excision surgery that she "only does a little bit of excision surgery'.
Anyway, I learnt a great lesson to look into the specialisms of consultants and I changed to see an endo consultant surgeon whose experience was rather more than a 'little excision". GPs tend to refer you to whoever has the title 'Gynae' at the local hospital - but they all have such a wide range of specialisms and some really are 'general' with a broad spectrum of knowledge but not specialising in particular.
If not already under an accredited endo centre, I certainly would recommend that you seek a referral to one of these from your GP.
All best wishes x x