I had my DLA appeal hearing yesterday which I have been waiting on for 2 years now. It was a very scarey hour spent in a court room being grilled by 3 men about my health conditions and how they effect me. To be honest when I went in I didnt think I would get very far with it as no one so far seems to listen and pay attention to what I have to say when I tell them how hard it is for me. My rep said I had a good case and my chances were good in the appeal but still I didnt think much of it as most of the doctors associated with the goverment seem to not listen to anything and write down what they like.
I was told I would ahve to wait a few days for the decision to be posted out to me but got a call in the afternoon from my rep. She had been told my someone in the court I was to be awarded the higher rate of mobility and the lower rate of care which is exactly what we hoped for. It is also to be back paid to when I made the claim. This is such good news we have struggled so much financially in the last 2 years I can't believe we are now going to get some help. I had to sell my car and have run up a massive debt with the bank of Dad (I am very lucky to have the option of doing this) but now I can be finanically indepentant. It is such a wonderfull feeling.
I wanted to share this with you here as I know a few people here are also going through this long drawn out process and not having and luck with it. I want you to know it is posible to get endometriosis taken seriously with them and there is light at the end of the tunnel. Stick with it and I hope you too will get the help and support you need. My one piece of advise for dealing with this is to get professioanl help with your claim. This doesnt have to cost you any money. I was aided by a local charity group that help people with legal need from housing to immigartion to all sorts of issues. If you don't know of anything local (I didnt when I started) go to Citizen's Advice they are great and will help you the best they can and point you in the right direction when they can't help.