UTI symptoms long term- endo? Does anyone... - Endometriosis UK

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UTI symptoms long term- endo? Does anyone else experience this

velvetonion profile image
4 Replies

Does anyone else get UTI symptoms a lot with their endo? Like burning, needing to go after you've already been but nothing comes out, cloudy pee etc? I used to get it a bit before but after I had my laparoscopy about 8 months ive had it ever since. three months after surgery i finally did a urine sample and i was put on antibiotics but it never fully cleared up, recently i went to do another sample as im still having intermittent symptoms but it came out clean and the doctors said they'll call me as im still having them but it was clear and they never did.

It's been more prominent post surgery and i know i don't do ANY of the risk factors for them like bath bombs, wiping wrong, sex/solo sex, certain underwear etc. Just wondering if anyone else gets this as it's slowly turning me insane having clear tests but knowing that it feels like a UTI.

I do get pain during urination during points in my cycle thats like a deep pain in my bladder/abdomen after during and after i pee, and always always have, but im more on about more urethral pain and UTI symptoms in specific. Thanks :)

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4 Replies
RedCat24 profile image
RedCat24

I suffer with my bladder too, most symptoms uv described, GP says its endo, endo nurse says its not. Iv been refered to urologist and take medication for over active bladder. I have a mri soon with endo specialists so hoping this will give answers

Endofitall profile image
Endofitall

I found it was made worse for me by chronic thrush and using probiotics really helped eg Optibac for women. Also having pelvic floor physio with a physio trained in endo also improved these symptoms for me. I hope you get relief soon.

fearsmarrow profile image
fearsmarrow

i have this too, i was put on amitriptyline for a few months last year - i didn't get on with it at all in many ways - but it did calm down the bladder symptoms my gyne says it's probably over active nerve pain. Staying really hydrated and having a constant hot water bottle helps. I'm having a hysterectomy for various things knowing it prob won't solve this. I'm on zolodex and that has definitely improved that in the weeks where it works.

Starfish123 profile image
Starfish123

I had uti’s for over 10 years before they went away when I was given HRT. Not sure if relevant but I was just over 40 when it all started. UTI’s after anything eg period, intercourse, smear etc etc. I had lots of tests and treatments but was never checked to see if early menopause symptom. It was pretty much the only symptom. My endo wasn’t found until I was over 50 but I’d had symptoms since teenager etc.

I was given the mirena coil initially which made a huge difference only 2 UTI’s after that and nothing after I started on estrogen patches. 8 years on now.

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