Different Pains: I’ve now been on my period... - Endometriosis UK

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Different Pains

ArcticMonkeys profile image
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I’ve now been on my period for 4 days, surprisingly the last 3 were only mild and manageable cramps. However today, I experienced sharp shooting and squeezing type pain that started on my left mid-upper back and spread to just under my ribs and shot down to my pelvis. This then led to a tightening pain on the upper left side of my abdomen. It was painful to the touch. Anyone experienced anything like this before? I have history of PCOS and undergoing further investigation of endo which I was previously thought to have due to signs on it on a scan x

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ArcticMonkeys profile image
ArcticMonkeys
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classicalpiano profile image
classicalpiano

hey! I’m experiencing a similar thing- I get this agonising sharp pain that starts in my upper left side and in my back and then travels down below my pelvis. Mine is also super painful to touch and I can’t stand or move my left leg. When it first happened I ended up going to A&E and was told it was just muscle pain 🙄. I still get the pain now and it usually happens when I’m more stressed. I was diagnosed with IBS but I’m also undergoing investigation into endometriosis too- I really feel it’s not just an IBS thing. Sorry this isn’t more helpful- I’m still searching for answers too, but hopefully it’s helpful to know someone is going through something similar! x

ArcticMonkeys profile image
ArcticMonkeys in reply toclassicalpiano

Yeah it’s frustrating, constantly being dismissed for our pain. Constantly being prescribed various pain meds just to cover up the issue but not fix it. I was diagnosed with endometriosis via an MRI in April 2022. I went for another MRI to see its progression July 2024 and was told there was no evidence of endometriosis. The doctors did not know what to do and are now confused about my diagnosis which feels like a massive step back? It’s still on my medical records and I still experience all the same symptoms. I am concerned why they didn’t investigate further. If not endometriosis what was on my first MRI and why is it now not there? The only explanation I can personally think of is my first MRI was an emergency one when I had a flare up and ovarian cyst burst, this was an MRI with contrast. The second MRI was a non-contrast one and was not during a flare up. Maybe this made the difference. They also did try to diagnose me with IBS at one point which I said did not make sense for me. I don’t even bother with A&E anymore, I’m always being turned away and when my ovarian cyst burst and I called for an ambulance they told me “we won’t send an ambulance because it’s probably just a bad period” and then I had to be taken to hospital!! Sorry you are experiencing this too and I hope we get our answers !! Xx

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