IUD stop or slow growth: Does the mirena or... - Endometriosis UK

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IUD stop or slow growth

Boxerdo profile image
10 Replies

Does the mirena or levosert IUD slow or Stop the growth of endo?

Very confused and worries next lap will find nothing

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Boxerdo profile image
Boxerdo
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10 Replies
JulesUK profile image
JulesUK

can only comment on the mirena; yes it does. Has worked brilliantly for me.

Boxerdo profile image
Boxerdo in reply toJulesUK

What it stopped growth or slowed the growth?

JulesUK profile image
JulesUK in reply toBoxerdo

My periods and pain stopped completely after a few months.

Boxerdo profile image
Boxerdo in reply toJulesUK

so endo will continue to growth nevertheless ? My reason for questioning is because I was diagnosed via diagnostic lap 2022 with superficial endo and inserted the IUD with a specialist endo gynae in NHS then had 2nd lap 12 months later for excision with a different consultant, said took the spots of endo away and sent 2 off for histology..... came back neg for endo.

Also just realized on my discharge from my diagnostic lap, says POD and RIGHT uterosacral Ligament, but on my 2nd lap with the man is says excised from POD and LEFT uterosacral Ligament which is not where it was diagnosed.

So this lap is with another specialist under the NHS as I have refused to have the bloke as he was so dismissive with it all didn't even get a post op follow up with him he just sent a letter!

I guess what I am worried about is going in and they saying nope, no endo.... but my symptoms are all coming back struggling like heck and the coil initially stopped my bleeding, I am bleeding every month to every other month now?

JulesUK profile image
JulesUK in reply toBoxerdo

If you are bleeding then it sounds like your endo could have come back. I didn’t have any bleeding.

Boxerdo profile image
Boxerdo in reply toJulesUK

possibly, how many laps have you had?

JulesUK profile image
JulesUK in reply toBoxerdo

I think 5 before I had the mirena coil.

Boxerdo profile image
Boxerdo in reply toJulesUK

ah fair, i am just flapping about it all big times. Don't want to have a pointless surgery

Lindle profile image
Lindle

No it doesn’t. All hormone meds aim only to help with symptoms and this will generally be by stopping or easing periods but endo can continue to progress. This is actually one of the main risk factors for developing severe disease down the line.

Boxerdo profile image
Boxerdo in reply toLindle

so endo will continue to growth nevertheless ? My reason for questioning is because I was diagnosed via diagnostic lap 2022 with superficial endo and inserted the IUD with a specialist endo gynae in NHS then had 2nd lap 12 months later for excision with a different consultant, said took the spots of endo away and sent 2 off for histology..... came back neg for endo.

Also just realized on my discharge from my diagnostic lap, says POD and RIGHT uterosacral Ligament, but on my 2nd lap with the man is says excised from POD and LEFT uterosacral Ligament which is not where it was diagnosed.

So this lap is with another specialist under the NHS as I have refused to have the bloke as he was so dismissive with it all didn't even get a post op follow up with him he just sent a letter!

I guess what I am worried about is going in and they saying nope, no endo.... but my symptoms are all coming back struggling like heck and the coil initially stopped my bleeding, I am bleeding every month to every other month now?

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