Endo & adeno and sex life (or lack of!)

[Bumblebee11]

I'm so sorry if this isn't appropriate, but I am actually so unsure of a safe space to post this without being hit up by the creeps!

I have posted before, but mostly relating to the pain/appointment aspects...

So I have been diagnosed with endo for years (11 years now actually). Before my husband (10 years!) I never had nice experiences anyway. There was one particularly vile male piece of trash but that's beside the point.. anyway, my husband always goes by whatever I say, is very considerate and loving. Except for the past year things have got stale, and not through lack of want but because my bleeding is more often and ridiculously heavy, and the pain is SEVERE.

I had a scan this week and they have diagnosed adenomyosis too, which i suspected but am very sad about, as well as reconfirming the endo is present.

Anyway, my question to those of you who also suffer like I do, do you have any tips to help in that department?!

I'm early 30s, my family is complete, and I should be at the point where I actually get to enjoy my husband, and likewise but last night I literally said to him it's either oral or nothing until I can convince them to remove my uterus.

There has to be SOMETHING I can do though. It is literally breaking my heart that I can't intimately connect with him.

Essentially, i feel like this disease is controlling all aspects of my life and I just want a tiny bit of control back that helps me feel like a woman and not a burden.

Any tips or advise welcome, please!

Thankyou all kindly,

Bee x

[Chartolfrey]

Im sorry your feeling like this but i can relate.January i was diagnosed with adeno and endo by lap surgery and my sex life has gone down the pan.

Anyway i had various breakdowns telling him i was in to much pain or bleeding to have full sex. I felt such a faliure i also said i can do this on ny own if he wanted to end this and find someone else

We have been together 10 years and married 7 and i just offered him a way out. After loads of talking and my emotions he said he would never even think about that. He comes to every app by booking of work couple hours and hears everything the hospital say and that has helped with understanding.

We now have a sort of sex life with oral, foreplay and that has helped me still feel connected.

Best thing is to talk through this as its not our fault its a disease

[1Poppy1234]

The mirena coil does help with the bleeding some consultants are for it done aren't. I take cod liver oil that helps with the bleeding too. It is difficult isn't it when you have both for me it doesn't always hurt but I don't always know when it's going to. My husband is so good listens never pushes he comes to appointments and listens it helps process it all. Using a good lube makes it better and lots of foreplay. What a job we all have!!!

[LME5]

Painful intercourse is never taken seriously by healthcare professionals. It's such an injustice against women. Enquire about pelvic physio therapy. Otherwise, excision surgery may help. Painful intercourse can be due to endometriosis existing behind the vagina, your rectum, pouch of douglas or uterosacral ligaments. A hysterectomy just means removal of your uterus. It won't help with your pain. Unless endometriosis is excised from all place, expect it to continue to exist post hysterectomy.