hospital declining diagnostic laparoscopy

[crunchylibra]

Hi all, first time on this forum

I just wanted to get some thoughts and advice as I just had my first hospital appointment after being referred for a diagnostic laparoscopy. I have had endo symptoms for as long as I can remember - first went to the doctors about 10 years ago and got put straight on the pill, but my mental health was suffering so I came off it. Went back to the doctors last year as my period pain was getting worse and worse, and they referred me to one of those NHS specialists that aren’t part of the hospital but kinda operate in their own bubble (not too sure how to explain). I had an ultrasound, biopsy, and mirena coil fitting through them. About 6 months after having the coil fitted I asked for a laparoscopy as I’d seen no improvement, so they referred me to hospital - now here we are.

anyway, I had that first appointment at hospital today with an endo specialist. I explained all of the above to him and he said he’ll do me another ultrasound - I was confused as I’d already had one, but he said he wants to do another as it’ll be more thorough and he can get an idea of what I’m dealing with. I asked again about surgery and he said it’s “silly” to put myself through all that under a “misconception” that it’ll tell me what I’m dealing with? I explained that all my research and talking to people has pointed me towards a laparoscopy but he stood by that he doesn’t want me to have one. I ended up crying as I felt really defeated at which point he ended the appointment as he said I wouldn’t take in anything he said in my current state.

I left feeling really upset and like I’m back to square one. Has anyone else experienced anything similar when trying to access a laparoscopy?

thanks

[Anaya8]

Hi

I understand your frustrations. From my own experience. Ultra sound scans did not show I had endometriosis and I’ve had many over the years.

Despite having (DIE)

To save yourself having to go through having an operation. See if they will send you for an MRI. They are great at picking up endometriosis and exactly where it is.

Hope this helps?

Take care xx

[Bk27]

hi lovely,

This sounds like absolute craziness, he sounds so rude! I had a tricky first gynae appointment and I contacted PALS to get a new consultant (have a look into this, my gp referred me to them). The original doctor was taken off my care.

When I contacted them, they were fast to react and i saw someone else quiet quickly, definitely sounds like you would benefit from a second opinion.

You know your body and a laparoscopy is the only why to get a diagnosis and treatment.

Hopefully you can get some help xx

[Willow456]

Where was this endo consultant based? You don’t have to say the name, but the one I saw had the same attitude although I had a laproscopy and diagnosed endo by a gynocologist in 2017 symptons have returned in the last 18 months the surgery for me was really successful in pain management. I requested a second one, but ultrasound showed no endo (this is always the case) but did show my right ovary slightly adhered to my pelvis?. All of my pain is in my right side, my endo consultants advise was basically it is what it is and symptom management is the way forward. I’ve done everything he asked even having my coil changed early and I have no relief in open to his clinic for the next 12 months so will be going back I had an mri 2 weeks ago so when those results are back I will be asking for the surgery. If he refuses I will do as below and ask for another opinion. It’s my body and my quality of life is impacted - we have a right to choose. He also referred he didn’t want to operate and if he did he made reference to removing my ovaries to slow the growth (bringing on the menopause) but that would be the only instance he operates… I’m sorry for what your going through there is simply not enough research or support for people with endo but it does help talking on this forum x

[Teeflyers]

You should complain to PALS and let the know about your experience that what I have had to do 3 times x