Negative lap after 'positive' MRI

[Horsegal2612]

I'm a few days post lap surgery. I've had symptoms of endo since I was about 17. I also have PCOS. I had a transvaginal ultrasound by a gynae consultant in approx 2021. He confirmed endometriosis on the basis he could see an endometrioma. I believe he also wrote that he saw 'features of adenomyosis'. Since then I have moved hospitals, and I'm now under the Royal Derby endometriosis centre, they are listed on the BSGE website. Through them I had an MRI 2 years ago, which confirmed:

"Left ovarian endometrioma. Deep pelvic endometriosis with adhesions between the posterior uterus and sigmoid. Adhesions between the right ovary and the sigmoid. No infiltrative plaque into bowel lumen."

After a 17 month wait, I had my lap surgery a few days ago, where I was told that the cyst was not in fact an endometrioma, but it was blood filled and there were some adhesions. However these adhesions were not endo. There was a small spot on my bladder which they have removed and sent for histology but he did not believe this was endo either. I can't remember whether adenomyosis was mentioned.

I'm feeling very confused. If I don't have endo, then what do I have? And why did it show up as endo on an MRI? Even speaking to the surgeon prior to my operation he mentioned the words 'deep' and 'extensive' multiple times. I've seen this has happened if the lap is performed by someone who is not a specialist, but my surgeon is!

What do I do now? It took me 11 years to get a 'diagnosis' in the first place, just feel lost to be told now that I don't have it after all.

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hello, I have all symptoms of endometriosis and didn’t have mri scan but I just had laparoscopy. They found adhesions in my pelvic area which were stuck to my bowel but said no endometriosis?! I am baffled. They just left me with we don’t know. I never had previous surgeries or any infections for these adhesions to form. I strongly suspect that I had deep tissue endometriosis which can’t be see during surgery. I also did some research and some endometriosis adhesions are clear, they don’t necessarily need to be discoloured or have nodules in them so I think we both have been misdiagnosed.