Advice

[Hannah_94]

Hey endo warriors 👋 I'm new here but would be nice to meet others who understand the daily struggles of the disease.

Just looking for any opinions/advice on taking the pill to help symptoms? My GP mentioned trying it a couple of times within the same appointment but I don't want something to just mask the symptoms.

Also interested if anyone would be willing to share any experience of having a hydrosalpinx? I'm struggling a lot with lower back pain and trying to gauge if this is the cause 🤔

Thanks for reading 📚

[Lizziemarie]

hi ya Hannah and same here hun just been diagnosed last week , all new to me I currently have a endometrioma or choc cyst currently keeping a check on it how re you xx

[Hannah_94 in reply to Lizziemarie]

I'm sorry to hear you've just had the diagnosis, mine was a year ago now and still feels new so I get you! It's difficult to navigate 😔

I hope you're under good care with a decent gynecologist 🙏 I've found it incredibly hard knowing what to believe with the contradictions I've faced 👎

So I had to have an emergency laparoscopy last year as I had a bad infection. All of my left ovary and tube was stuck to my bowels and yeah was a tough experience. Several docs and hospital appointments later and I have Endometriosis, Adenomyosis, Hydrosalpinx, Endometrioma, sciatica and possibly a dislocated toe.

Trying my best to avoid foods I know hurt me or reduce at least. Red meat increases estrogen levels which can encourage the endo growth, pretty much 0 dairy other than hot drinks, pastry, bread. Planning on maybe seeing a nutritionist soon, have minimal appetite atm, still trying to keep positive though 😅

How long have you had your symptoms? And any triggers you've noticed? Or things that help??

[FrecklesandFlowers]

Hiya! I haven't been diagnosed yet but I take the pill to manage the symptoms. I was reluctant initially because I have had bad experiences in the past with the progesterone only pill and the combined pill, but I think the general idea is if you stop having periods, the endo tissue will grow more slowly/you'll prevent further spread of the tissue. So I now take the combined pill (a different one to before) and I only have 3 periods a year, which is great, but I do get some side effects like bad moods. If you do decide to try it, just keep in mind that it's a bit of a game of trial and error!

[Hannah_94 in reply to FrecklesandFlowers]

Hey! Do you find the 3 periods are more intense? And how long have you been on it?? Yeah that does make sense, I guess same as you when I tried the pill in the past I had random mega painful periods and often affected my mood. My GP mentioned the progesterone only pill which I think is the only one I can take and was the one I mentioned above. You're totally right trial and error is the best option to deal with the symptoms! Thankyou for sharing 😊

[FrecklesandFlowers in reply to Hannah_94]

I wouldn't say my periods are more intense, but the pill doesn't do much to reduce their impact either. I'm prescribed naproxen for pain so I take that as well. I find it works best if I start taking it a few days before my period starts (they have always been quite predicable for me and even more so on the pill) so it's had time to build up! Yeah even different kinds of the same pill can work differently for you, and it took about a year I'd say for my body to get used to it

[Chartolfrey]

Hi i was diagnosed in january via lap surgery for suspected enso and a cyst. They couldnt continue with surgery as was so severe so just drained a large cyst. I had a mri in march and put on the waiting list in may for hysterectomy.I have endo, adeo, 2 endemetriomas, fibroids, bowels stuck to kissing ovaries. They wanna fo a full pelvic clear out but 12-18 month wait.

Ive been put on zoledex and since jab 3 ive just had number 8 ive had no periods and the flare ups are no where near bad just paracetamol.

Downside is menopause and symptoms