I have both endometriosis and adenomyosis, my GP is pushing me to have a coil fitted but I am really anxious. I have heard so mixed reviews about them but never spoken to anyone with Endo/Aden about it.
What are your experiences? Should I try it or not?
i had my coil fitted during my laparoscopy and i had it fitted under the impression that because my pill wasn’t helping, i might as well try something else. And im 2 weeks post op and if i dont get on with it i’ll have it removed but so far its ok. The surgeons and specialists nurses were really keen for me to try it.
Hi. I had a coil fitted during my lap too. it took a few months for the effects to be noticeable on my adenomyosis but it's definitely made a difference. I had a coil previously, not fitted during an operation, and it's not the most fun experience but no major issues with it,
It can depend on your symptoms as well as the fact we can all respond to treatments different, but as I had very heavy, long and irregular periods, the Mirena was a godsend for me as it stopped my periods. Didn’t do anything for my pelvic pain at all.
It can take a few months to settle down, so if you go for it, give it time to work as you probably won’t find you notice much difference in the first couple of weeks.
I had one fitted as the one pill I could have wasn’t working anymore, wasn’t too uncomfortable actually even though the doctor had trouble due to being tilted ?
I’ve gone from constantly being on heavy ( super plus tampons and disposable sanitary pants I could easily go through a pack of each a day ) to being on 2x per month relatively normal flow ( sorry regarding details)
Pains better to 🥹
Hope you feel better
Take care x
I had adenomyosis and had the coil fitted twice, but twice it was pushed out because of the heavy blood flow. So I never even got a chance to see if it worked. I'd say there's no harm in trying though. It's not like it's a permanent thing if it's not working out for you.
Hi :)I had the coil placed whilst I was having treatment for endo, it didn't work out well for me, after a month I had an ultrasound to check the coil was in place, and it wasn't! It was at risk of migrating elsewhere in my abdominal cavity so needed to be removed immediately! The removal was awful, painful as the dr decided to use a massive speculum causing me pain and a useless pair of forceps that wouldn't grip the coil for removal, the whole process was distressing. I decided after the removal to go on desogestrel, it worked brilliantly! It stopped my periods, which was great, however, I've suffered chronic constipation on this pill. I feel that you have to go with what feels right, if the coil doesn't feel right, don't do it. There are other medications and it might be trial and error but hopefully you'll find something that works for you. At present ive just come off desogestrel as I'm wondering where I am in the menopause phase and almost immediately my bowels started working normally (yay) but the pain started immediately (had to take codeine) and spotting started all within a week of stopping the pill. I feel that those of us that suffer with endo never have that pain free, symptom free experience. There's always side effects, some can be managed, some can be lived with. There's always a trade off. It's about finding something that helps you to live your best life. I wish you all the best. Look into diet, I feel that maybe that's where our answers lie.
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