Advice after laparoscopy : After my... - Endometriosis UK

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Advice after laparoscopy

Lotusflower29x profile image
4 Replies

After my laparoscopy on Wednesday which showed no signs of endometriosis I have decided to book an appointment with a specialist. I want to get a second opinion on what might be causing my symptoms.

I just wanted to ask if anyone has had a similar experience where they’ve been told nothing has been found, but at a later date something has?

I am considering coming off my contraceptive pill as I have been on it for over half my life (at least 14 years). I don’t know what my cycle is like without it. I remember how bad it was before starting the pill and it does scare me that I may be going back to that. However, if I let the doctors see how bad it is maybe they’ll listen?

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Lotusflower29x profile image
Lotusflower29x
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Jade2006 profile image
Jade2006

yes I would definitely come off .

Only knew when I came off the pill and oh my it was very bad and severe .

Was your surgery done by a gynaecologist that specifically trained in endometriosis?

As if it was just a general gynaecologist they have no clue xx

Lotusflower29x profile image
Lotusflower29x in reply toJade2006

Hey! She is a Consultant Obstetrician & Gynaecologist, Clinical Director with special interests in Early Pregnancy and benign gynaecology according to the hospital website x

Lofty1589 profile image
Lofty1589

Had my first lap by a general gynae in 2019, nothing seen but moved to a specialist and he said Adenomyosis was clearly present. Second lap in 2022 after no improvement, patches of Endo seen and a nodule over my ureter - nothing removed as not skilled enough. Third lap Feb 2024 and I had widespread stage 3 Endo which was robotically excised by an Endo specialist.

Please do not give up

Lotusflower29x profile image
Lotusflower29x

I just wanted to give an update on my situation. This evening I saw a private consultant to discuss my concerns following my recent laparoscopy. He was so understanding and listened to everything I had to say. I left the consultation in tears as it’s felt like such a long time coming. He has agreed to perform another laparoscopy and did advise that the conraceptive pill can sometimes mask the effects of endometriosis. Therefore, he wants me to have a break from this before the surgery.

Im shocked I wasn’t a asked to stop taking my pill before my procedure under the NHS 🙁

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