PCS Diagnosis

[VioletCoffee]

hey everyone!

i paid for a private MRI and got the results back and it found varicose veins around my ovaries and pelvic congestion syndrome as well as polycystic ovaries. if anyone else has pelvic congestion syndrome, can you offer any suggestions as i'm at quite of a loss as i've done some research but definitely don't know a lot about it, it does make sense though with my symptoms.

i'm quite mad though at the nhs, as i have had an ultrasound, mri and laparoscopy in the past and this wasn't mentioned once, when i definitely would have had this back then as i've had this pain for 7 years now!

anyways, feeling seen finally for the first time in those 7 years, after being constantly told there is nothing wrong with me despite chronic agonizing pain that has led me to leaving jobs.

[SavageGold]

Hello! I have enlarged arteries and retroflexed retroverted uterus diagnosed on my mri too. I paid for this privately as it was not mentioned at my nhs ultrasound. I don't think everybody is trained to spot female issues in mri. Plus I think older mri machines are 'grainy' and provide less definition. At the same time, there's no excuse for the nhs to have opened you up and done a laparoscopy without someone properly trained in diagnosis.

My treatment that keeps me comfortable is the depo provera but it's not the first go to treatment. I still get uncomfortable when I eat or stand too long. I still feel like I need to pee alot. I feel alot better since I'm not bleeding or going through a normal mentrual cycle. I hope that helps a little.

[VioletCoffee in reply to SavageGold]

I'm looking to get treatment now, I get similar symptoms, I'm always worse at the end of the day. I am on dienogest though which has stopped my periods which has made me flare up wayyy less! Hope things get better for you x

[Redrobin20]

Hi there. Sorry to hear of your struggles, wanted to reply to say I've had a treatment for pelvic congestion and am due to have the procedure again in a few months. My symptoms have all been tied up with endometriosis symptoms but after many years of hormones and procedures I was still getting shooting type pains and did some research and found pelvic congestion. Through private I had an MRI to look for it and I think because I had asked for it to be looked at specifically they knew what to look out for. It took a good while longer to find a interventional radiologist to perform the procedure of pelvic embolistion, and i eventually found one on private but he does perform the procedure under the NHS. The first procedure gave me some relief but after a further MRI he could see there is still congestion, so having another procedure soon. Hope this helps, please free to reach out for further information. Best wishes.