Hi All,
Needing some advice as I have finally got a gynae appointment next month and need to know what to ask about and what I want.
For some history, in 2000 I have been diagnosed with PCOS, 2005 Stage 1 Endo, 2021 Stage 4 Endo with uterus and ovaries stuck to bowel and Fibroids and Adenomyosis, which the forgot to tell me about at the time and only found out in 2023/2024.
Just because initially, I had no symptoms, I have had no follow ups, referrals to speak with specialists in this area or offered any potential treatments to prevent further worsening.
Despite asking for full hysterectomy, I was told that now I’m menopausal and on HRT there is no point as symptoms and pain will settle down and I will just have to live with pain. Although it was mentioned there has never been a follow up regarding getting a sigmoidoscopy to check what damage if any with the adhesion with the usterus.
As you can imagine this was not acceptable and I told them I was not prepared to live the rest of my life in pain or without a sex life. I have constant pain which has worsened over the last few years, can’t go to loo, without pain and lost relationships because I can’t be intimate due to pain.
The very unhelpful female Gynae surgeon I am seeing, is the originally one saw privately a few years previously, then a few years later GP referred to NHS and I got the same surgeon.
All I want is a full hysterectomy but despite meeting the criteria for this I have been denied all because I am menopausal on HRT. I am already gluten and dairy free this eases the pain and inflammation. Pain meds help but I don’t want to live the rest of my life popping pills.
Can anyone advise what I should be saying to push for proper treatment instead of being fobbed off. Any advice appreciated.