thickening of uterosacral ligament

[Yols2024]

hello!

I have been struggling with my period for years, with a lot of pain during it but also during ovulation, bowel movements etc. i was finally referred to a gynaecologist after my ultrasounds were all ok, who sent me to do an MRI. This was more than a month ago. They have not called me (I guess it is not urgent), but I can see in my records that the results say that I have both uterosacral ligaments thickened. However it also says in the conclusion that “there isn’t large plaques of deep infiltrating endometriosis or clear rectosigmoid involvement”.

i have talked to a advanced nurse practitioner today who said that it probably means that there is no endo, however he didn’t know how to explain another reason for the thickening of the uterosacral ligaments. Does anyone have experience with this? (These results and no endo, if that’s even an option?)’ i am asking because I dont have an appointment till September and they told me they cannot say anything on the phone…

thanks!

[Tangoandmax]

I have recently had a MRI scan, which reported probable endometriosis due to a number of things - one of them was thickened uterosacral ligaments. I think it’s a sign of chronic inflammation from endo. I’d have a read up and go in to your appointment prepared, symptom diary etc. don’t let them fob you off. Good luck xx

[Comedykid]

I had an mri and this has been reported on mine and they have said there might be endo and I had thickening of uterosacral ligaments and I’m having surgery in july. Like the last comment said, I would go in with a symptom diary and make sure they explain everything to your satisfaction. If you still aren’t sure then get a second opinion

[Lauramomo in reply to Comedykid]

My TVS showed both Uterosacral ligaments thickened and stuck to the back of uterus.. but I’m asymptomatic so I’m avoiding surgery but I’m afraid does it cause ureter involvement ??

[Lofty1589]

A previous MRI showed my left uterosacral ligament was thickened. Most of my Endo found was on my left side and it’s also where most of my pain is. I have stage 3

[Lauramomo in reply to Lofty1589]

Did you have ureter involvement??

[Lofty1589 in reply to Lauramomo]

I did, yes. I had a nodule on my left ureter

[Lauramomo in reply to Lofty1589]

My TVS showed both Uterosacral ligaments thickened and stuck to the back of uterus.. but I’m asymptomatic so I’m avoiding surgery but I’m afraid does it cause ureter involvement

[Lofty1589 in reply to Lauramomo]

It really depends. Thickened uterosacral ligaments can be a sign of deeper Endo which can affect the ureters. Unfortunately, avoiding surgery will only ensure the Endo continues to grow and get worse. I can totally understand why you wish to avoid it but I would recommend having excision to avoid serious problems down the line

[Marcia71]

I had an mri show thickened uterosacral ligaments and a follow up transvaginal ultrasound with a specialist saw deep endo on my uterosacral ligaments and also within vaginal vault (I’d had a hysterectomy) and that’s very close to the us ligaments.

[Lauramomo in reply to Marcia71]

Did you have ureter involvement??

[Marcia71 in reply to Lauramomo]

Yes - they had to be stented to excise endo around them

[Lauramomo in reply to Marcia71]

My TVS showed both Uterosacral ligaments thickened and stuck to the back of uterus.. but I’m asymptomatic so I’m avoiding surgery but I’m afraid does it cause ureter involvement

[Marcia71 in reply to Lauramomo]

The ureters are very close to the us ligaments. Would be best to have regular scans with someone trained in seeing endo on scans so that they can keep an eye on all organs and let you know if endo affects them. I was asymptomatic before hysterectomy but then was in awful pain as hyster not done by endo specialist when it should have been as I had severe rectovaginal endo. I only got better once I had surgery at a bsge with a team of surgeons. So it’s about picking the right surgeon and team. Good luck with it all. It is a horrible disease.