tailbone pain?

[Ginge2001]

so recently I have had unbearable tail bone pain, and it’s constantly and it is making my flare up a lot worse? Has anyone had this before? I am scared my endo has spread into a nerve or something as in surgery last year it saying my pouch of Douglas has attached it’s self to my bowels

[EndoCoeliac_Woman]

Hi.Neuropathic pain is very common because lesions can involve nerves passing around the bowels. If you picture it that it makes sense that, for me, doing mobility and stretching exercises helps a lot. Now it will sound silly if you're in a lot of pain, I was as well, but simpe mobility exercises can reduce it or even make it go away. Every two days I do a 10 minutes routine with some jentle yoga exercises like down dog, cobra pose and other for the thoracic spine. By moving in all different directions you decompress the bowels and the nerves that may get stuck. It's scientific? No. It helped a lot of women with endo? From what I saw on forums, and in my experience, yes.

I hope you give it a try. Let us know

[DutchVanderling]

I get that a lot. It’s actually what gave me the push to go back to the doc yet again (going since I was 8 for stuff related to this I believe) and finally they found endo - cause I have a female doc who cared and an ultrasound lady who knew what she was looking for from the symptoms. Neuropathic pain is horrendous and it can put pressure particularly if it is spreading towards the pudental nerve (minimal push to go *again*).

Like the other lady says, exercise helps a lot, there’s a fab website I found called healendo.com that explains some of the exercises that can help and I’ve found they are actually very useful. But basically, you’re not alone.

[mrskiki]

Could be, my organs have adhesions too and as well as tailbone, lower back, it can even hurt in that area to roll over suddenly , as in bed. I also started my yoga again and some slow Pilates, to try and build up mobility and strength. Always worth mentioning it to GP to get it noted down, but they unfortunately tend to often look blank when it comes to these things.

[Scoutybob]

This is my longest standing symptom from far earlier that pelvic pain. I couldn't understand it for ages, I put it down to a fall I'd had a few years before when I'd landed on my tailbone but in hindsight this must have been my first endo symptom. I have stage 4 with frozen pelvis and bowel involvement. I also have distortion of the ligaments and I'm not sure if that's part of the tailbone pain. For years, any yoga or exercise that put the slightest pressure on my tailbone and lower back would actually send me through the roof and I couldn't understand it. If I either sit for too long or stand for too long I really struggle. I have to alternate and keep move it. I do agree with posts above, yoga does help and also heat.

[asread]

Hi there

I have similar pain. I found a knee pillow for sleeping on my side helps, I sit on a heat mat and have a heated under sheet blanket and also I just got a specific cushion for Vaginismus style pain from putnams online which is fantastic - it has a cut out to relive pressure - I put my heat mat on top of this and it’s much more comfortable to sit now. I also have aromatherapy massage which helps a lot.